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Patients' views on reference to clinical data

N Hamajima1, K Tajima

  • 1Division of Epidemiology, Aichi Cancer Center Research Institute, Nagoya, Japan.

Journal of Epidemiology
|March 1, 1997
PubMed
Summary
This summary is machine-generated.

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Most cancer patients believe hospitals should actively improve care. A large majority are comfortable with their clinical data being used to enhance healthcare and treatment skills.

Area of Science:

  • Medical research ethics
  • Patient-centered care
  • Health services research

Background:

  • Patient perspectives are crucial for ethical clinical data utilization.
  • Understanding patient views informs policies on data sharing for research.
  • Cancer patient attitudes towards data use require specific investigation.

Purpose of the Study:

  • To survey patient opinions on using clinical data for research.
  • To gauge patient acceptance of data reference for healthcare improvement.
  • To assess patient expectations for hospital quality enhancement.

Main Methods:

  • Anonymous, self-administered questionnaires were distributed to outpatients and inpatients at Aichi Cancer Center Hospital in 1995.
  • The study included first-visit outpatients, randomly selected revisit outpatients, and eligible inpatients.
Keywords:
Aichi Cancer Center HospitalBiomedical and Behavioral ResearchEmpirical Approach

Related Experiment Videos

  • A total of 293 patients completed the survey.

    • Main Results:

    • 85.3% of patients felt hospitals should actively strive to improve healthcare and treatment skills.
    • 88.1% of patients found reference to their clinical data for improving healthcare and treatment skills to be "preferable" or "don't mind".

    Conclusions:

    • The majority of cancer patients support hospitals actively improving care quality.
    • Patients generally consent to the use of their clinical data for research aimed at enhancing healthcare.
    • This indicates a favorable patient attitude towards data utilization for medical advancement.