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Social support in children with a chronic condition
M L Ellerton1, M J Stewart, J A Ritchie
1School of Nursing, Dalhousie University, Halifax, Nova Scotia.
Insights
Children with chronic conditions utilize social support for daily and illness-related stress. Healthy children have larger support networks, while those with spina bifida have the smallest, impacting their coping strategies.
Area of Science:
- Pediatric Psychology
- Child Health and Development
- Social Support Systems
Background:
- Understanding social support is crucial for children managing chronic conditions.
- Coping mechanisms in pediatric chronic illness require further investigation.
- Social support networks influence adaptation to health challenges in children.
Purpose of the Study:
- To describe social support in children with chronic conditions.
- To explore how children use social support to cope with daily and illness-related stressors.
- To compare social support and coping strategies between children with and without chronic illnesses.
Main Methods:
- Descriptive exploratory study design.
- Inclusion of 62 school-aged children: 16 with diabetes, 16 with cystic fibrosis, 15 with spina bifida, and 15 healthy controls.
- Data collection on social support networks, functions, satisfaction, and coping strategies in stressful situations.
Main Results:
- Healthy children possessed larger overall and peer support networks compared to children with chronic conditions.
- Children with spina bifida had the smallest networks, particularly peer networks.
- Children with chronic conditions reported more stress and support-seeking in everyday situations than in illness-related ones.
Conclusions:
- Social support network size and composition differ between healthy children and those with chronic conditions.
- Children with chronic conditions face unique stressors, such as illness-related restrictions.
- Findings inform the development of targeted social support interventions for pediatric chronic illness populations.
Abstract:
This study used a descriptive exploratory design to describe social support in children with a chronic condition and how children use social support in coping with everyday demands and demands related to their condition. Participants comprised 62 school-aged children (16 with diabetes, 16 with cystic fibrosis, 15 with spina bifida, and 15 with no chronic illness). Data were collected about their social-support networks, the support functions provided by the networks, and their satisfaction with support. The children also described the social support they received and their use of social support as a coping strategy in specific stressful situations. The healthy children had the largest support networks overall and the largest peer networks. Children with spina bifida had the smallest networks overall and the smallest number of peers in their networks. Healthy children reported more support overall than the children in the illness groups. Both the healthy children and the children with a chronic condition described academic issues as the main source of everyday stress. Children with a chronic condition identified restriction due to illness as the key illness-related stressor. Children with a chronic condition reported more stress and more support-seeking in everyday stressful situations than in illness situations. The results will guide the design of a future social-support intervention for children with a chronic condition.
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