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Ethical research with the mentally disordered

J Arboleda-Flórez1, D N Weisstub

  • 1Faculty of Law, University of Calgary, Alberta.

Canadian Journal of Psychiatry. Revue Canadienne De Psychiatrie
|June 1, 1997
PubMed
Summary

Mentally disordered individuals need protection in research but also the right to consent. Legislation is needed to allow them and their representatives to participate in non-therapeutic research ethically.

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Area of Science:

  • Bioethics
  • Neuroscience
  • Public Health Policy

Background:

  • Mentally disordered individuals are a vulnerable population in non-therapeutic biomedical research.
  • Concerns exist regarding their competence and voluntariness in research participation.
  • Existing protections may not adequately address their decision-making potential.

Purpose of the Study:

  • To explore the ethical and legal frameworks for involving mentally disordered individuals in non-therapeutic research.
  • To advocate for respecting and maximizing the decision-making capacity of this population.
  • To address the need for clear guidelines on substituted consent for research participation.

Main Methods:

  • Review of ethical principles and legal precedents concerning vulnerable populations in research.
Keywords:
Biomedical and Behavioral ResearchLaw Reform Commission of CanadaMental Health TherapiesUniform Mental Health Act 1987 (Canada)

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  • Analysis of existing frameworks for informed consent and substituted decision-making.
  • Examination of the role of research ethics committees (RECs) and legislated guidelines.

    • Main Results:

    • Mentally disordered individuals require specific protections but also the right to consent to research.
    • Competent individuals should be able to issue research directives or durable powers of attorney.
    • Substitute decision-makers need clear parameters for consent when individuals become incapacitated.

    Conclusions:

    • Non-therapeutic research with mentally disordered individuals should be permitted within ethical and legislated boundaries.
    • Legislation is required to clarify the legal status of substituted consent and provide guidelines for its application.
    • Guidelines should encompass research scope, researcher obligations, subject rights, and REC responsibilities, ensuring voluntary and informed consent.