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Genetic counselling: information given, recall and satisfaction
S Michie1, V McDonald, T M Marteau
1Psychology and Genetics Research Group, UMDS Guy's Campus, London, UK.
Patient Education and Counseling
|November 14, 1997
Summary
This study on genetic counseling found that while patients recall most key information, their knowledge level doesn't impact satisfaction or anxiety. Assessing multiple outcomes is crucial for effective genetic counseling.
Area of Science:
- Genetics
- Medical Counseling
Background:
- Genetic counseling provides vital information for patients facing genetic conditions.
- Assessing patient comprehension and satisfaction is key to effective counseling.
Purpose of the Study:
- To categorize key information in genetic counseling sessions.
- To evaluate patient recall of genetic information.
- To examine the relationship between patient knowledge, satisfaction, expectations, concern, and anxiety.
Main Methods:
- Developed an individualized knowledge questionnaire for key genetic counseling points.
- Assigned information items to 13 content categories.
- Surveyed 32 counsellees 2-4 weeks post-consultation on knowledge and outcomes.
Main Results:
- Mean recall of key genetic counseling points was 76%.
- 100% recall for family issues, 68-78% for genetic/medical information.
- Patient knowledge did not correlate with satisfaction, concern, or anxiety.
Conclusions:
- Patients demonstrate high recall for family information but variable recall for medical details.
- Patient knowledge level is not directly linked to satisfaction or emotional state post-counseling.
- Multiple outcome measures are essential for a comprehensive evaluation of genetic counseling effectiveness.