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A family affected by mitochondrial encephalomyopathy: a nursing protocol
1Graduate Nursing Science Department, California State University, Dominquez Hills, Carson, USA.
Clinical Nurse Specialist CNS
|November 18, 1997
Summary
Mitochondrial encephalomyopathies are rare genetic disorders affecting high-energy organs. This article introduces these conditions and offers a nursing protocol to guide care, addressing family needs and outcomes.
Area of Science:
- Neurology
- Genetics
- Nursing Science
Background:
- Mitochondrial encephalomyopathies are rare genetic disorders impacting organs with high oxidative demands, including the brain, muscles, and heart.
- While medically documented, these conditions are underrepresented in nursing literature.
Observation:
- A gap exists in nursing literature regarding mitochondrial encephalomyopathies.
- Nursing practice requires a structured approach for managing these complex genetic disorders.
Findings:
- This article provides a comprehensive overview of mitochondrial encephalomyopathies.
- A novel nursing protocol, derived from a case study and Dungan's model, is presented.
Implications:
- The developed protocol aims to guide nursing interventions and improve patient outcomes.
- This work bridges the gap in nursing knowledge, offering practical tools for clinicians caring for patients with mitochondrial disorders.