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The HIV-specific advance directive

P A Singer1, E C Thiel, I Salit

  • 1University of Toronto Joint Centre for Bioethics, Department of Medicine, University of Toronto, Canada.

Journal of General Internal Medicine
|January 22, 1998
PubMed
Summary
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Persons living with HIV (PLWH) prefer disease-specific advance directives over generic ones. Offering tailored HIV Living Wills improves patient autonomy and care planning for individuals with HIV.

Area of Science:

  • Bioethics
  • Public Health
  • Clinical Medicine

Background:

  • Advance directives are crucial for patient autonomy in healthcare decisions.
  • Generic advance directives may not adequately address the specific needs of individuals with chronic conditions like HIV.

Purpose of the Study:

  • To compare the acceptability of a disease-specific HIV advance directive versus a generic advance directive among persons living with HIV (PLWH).

Main Methods:

  • A randomized clinical trial was conducted with volunteers from an HIV consumer organization and a hospital-based HIV clinic.
  • Participants were randomized to receive either a disease-specific HIV Living Will, a generic Centre for Bioethics Living Will, or both.

Main Results:

  • Out of 101 participants, 77.2% preferred the disease-specific HIV Living Will over the generic version (p < .001).
Keywords:
Death and EuthanasiaEmpirical Approach

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  • Preference for the HIV Living Will was primarily due to its perceived specificity and relevance to participants' health situations.

    • Conclusions:

    • Persons living with HIV demonstrate a clear preference for disease-specific advance directives.
    • Healthcare providers should offer disease-specific advance directives to PLWH to enhance their engagement in care planning.
    • The study supports the development and evaluation of disease-specific advance directives across various clinical settings.