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Related Experiment Videos

The complexities embedded in family-centered care

M C Lawlor1, C F Mattingly

  • 1Department of Occupational Therapy, University of Southern California, Los Angeles 90033, USA.

The American Journal of Occupational Therapy : Official Publication of the American Occupational Therapy Association
|April 17, 1998
PubMed
Summary

Implementing family-centered care presents challenges for professionals. Effective partnerships require understanding cultural influences and supporting practitioners

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Area of Science:

  • Pediatric healthcare
  • Family-centered care
  • Special health care needs

Background:

  • The shift towards family-centered care, influenced by legislation like the Education for All Handicapped Children Amendments of 1986, challenges traditional client-centered models.
  • Current understanding of family-centered care implementation often lags behind practice, impacting the development of effective services.
  • Integrating families as collaborators in pediatric treatment significantly alters practitioner perceptions of families and the therapeutic process.

Purpose of the Study:

  • To identify and analyze critical dilemmas encountered by pediatric practitioners and parents in implementing family-centered care.
  • To explore the complexities of building effective partnerships within pediatric healthcare settings.
  • To examine the influence of diverse cultural backgrounds on everyday practices in family-centered care.

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Main Methods:

  • Utilized ethnographic research to gather in-depth data on practitioner and parent experiences.
  • Conducted descriptive studies to analyze service delivery models and outcomes.
  • Held training seminars with pediatric practitioners and parents of children with special health care needs to elicit critical dilemmas.

Main Results:

  • Identified significant complexities in establishing collaborative partnerships between healthcare professionals and families.
  • Highlighted the pervasive influence of multiple cultural perspectives on daily healthcare practices and interactions.
  • Revealed a need for enhanced support systems for practitioners addressing the emotional and social aspects of care.

Conclusions:

  • Effective family-centered care necessitates addressing the complexities of partnership-building and cultural diversity.
  • Practitioners require targeted support to navigate the emotional and social dimensions inherent in collaborative care models.
  • Future research should focus on developing and evaluating strategies to overcome identified dilemmas in family-centered care implementation.