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Functional status in limb deficiency: development of an outcome measure for preschool children
S D Pruitt1, J W Varni, M Seid
1Department of Psychiatry, University of California, School of Medicine, San Deigo Veterans Affairs Medical Center, 92161, USA.
Insights
A new functional status measure, the Child Amputee Prosthetics Project-Functional Status Inventory for Preschool children (CAPP-FSIP), shows promise for evaluating young children with limb deficiency.
Area of Science:
- Pediatric rehabilitation
- Prosthetics and orthotics
- Functional outcome measurement
Background:
- Preschool children with limb deficiency require specialized functional assessments.
- Existing outcome measures may not adequately capture the functional status of this population.
- Developing a reliable and valid tool is crucial for monitoring progress and guiding interventions.
Purpose of the Study:
- To develop and validate a new functional status outcome measure for preschool-aged children with limb deficiency.
- The measure aims to assess functional abilities in daily activities.
- To provide a tool for clinicians and researchers working with this specific pediatric population.
Main Methods:
- Parents of 52 preschool children (ages 4-7) with limb deficiency completed the newly developed Child Amputee Prosthetics Project-Functional Status Inventory for Preschool children (CAPP-FSIP).
- Data were collected during routine outpatient pediatric clinic visits.
- Psychometric properties, including reliability and validity, were evaluated.
Main Results:
- The CAPP-FSIP demonstrated high internal consistency reliability.
- Content validity was confirmed through expert clinician review.
- Construct validity was supported by the instrument's ability to differentiate functional activities based on limb deficiency type and prosthesis use.
Conclusions:
- The Child Amputee Prosthetics Project-Functional Status Inventory for Preschool children (CAPP-FSIP) is a reliable and valid measure.
- This new instrument shows potential for evaluating functional status in preschool children with limb deficiency.
- The CAPP-FSIP can aid in clinical decision-making and research in pediatric limb deficiency.
Objective:
To develop an outcome measure of functional status in preschool children with limb deficiency.
Design:
Parents of preschool children with limb deficiency completed self-report measures during a routine medical clinic visit.
Setting:
Outpatient pediatric clinic.
Participants:
Fifty-two parents of children (ages 4 to 7) with acquired or congenital limb deficiency.
Main Outcome Measure:
The newly developed Child Amputee Prosthetics Project-Functional Status Inventory for Preschool children (CAPP-FSIP).
Results:
Initial psychometric studies indicate high internal consistency reliability of the new instrument. Content validity was established through expert clinician review. Initial construct validity analyses confirm that the CAPP-FSIP discriminates between children with upper and lower deficiency and their prosthesis use for functional activities.
Conclusion:
The CAPP-FSIP is a promising new measure for evaluating preschool age children with limb deficiency.