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Surgical Management of Meatal Stenosis with Meatoplasty
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Parenting children with anorectal malformations: implications and experiences

E A Hassink1, A T Brugman-Boezeman, L M Robbroeckx

  • 1Department of Pediatric Surgery, University Hospital Nijmegen, Nijmegen, The Netherlands.

Pediatric Surgery International
|June 26, 1998
PubMed
Summary

Parents of children with anorectal malformation (ARM) generally do not experience more stress than parents of healthy children. However, parents of older, incontinent sons or children with behavioral issues report higher parenting stress.

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Area of Science:

  • Pediatric Surgery
  • Child Psychology
  • Family Medicine

Background:

  • Anorectal malformation (ARM) significantly impacts a child's life and requires substantial parental guidance.
  • Understanding parental stress and influencing factors is crucial for effective support and care.

Purpose of the Study:

  • To investigate parenting stress in families with children suffering from anorectal malformation (ARM).
  • To identify child-specific characteristics (somatic or behavioral) that influence parental stress.
  • To explore parents' experiences with the implications of ARM in daily life and their need for support.

Main Methods:

  • Surveyed 109 parents of children with ARM using the Nijmegen Questionnaire on Child-rearing Situations (NQCS).
  • Assessed child behavioral characteristics via the Child Behaviour Checklist (CBCL) and Teacher Report Form (TRF).
  • Conducted semi-structured interviews to understand parents' lived experiences with their child's disability.

Main Results:

  • Parents of children with ARM reported similar stress levels to parents of healthy children.
  • Higher stress was observed in parents of older, incontinent children, particularly males.
  • Difficult child behavior was perceived as more stressful than fecal incontinence by parents.
  • No higher-than-normal incidence of deviant behavior was reported by parents or teachers.

Conclusions:

  • Parenting a child with ARM does not inherently lead to child-rearing problems.
  • Parents of older, incontinent sons and those with children exhibiting behavioral problems are at higher risk for stress.
  • Parents express concern and a need for tailored counseling and support to cope with ARM's implications.