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The psychosocial and cognitive impact of Duchenne's muscular dystrophy
R J Polakoff1, A A Morton, K D Koch
1Department of Psychology, Texas Scottish Rite Hospital for Children, Dallas 75219-3993, USA.
Insights
Duchenne muscular dystrophy (DMD) impacts children physically and cognitively. This review covers emotional, behavioral, cognitive, and learning issues in DMD patients and families, offering physician guidance and research directions.
Area of Science:
- Neurology
- Pediatrics
- Genetics
Background:
- Duchenne muscular dystrophy (DMD) is a severe neuromuscular disorder.
- DMD affects physical function, cognition, and emotional well-being.
- Families and caregivers of children with DMD face unique challenges.
Purpose of the Study:
- To review emotional and behavioral issues in DMD.
- To examine cognitive and learning problems in DMD.
- To provide recommendations for physicians and future research.
Main Methods:
- Literature review of emotional/behavioral aspects.
- Analysis of research on cognitive/learning issues.
- Synthesis of findings for clinical and research recommendations.
Main Results:
- DMD is associated with significant emotional, behavioral, cognitive, and learning challenges.
- Families and caregivers require specialized support.
- Current research highlights the multifaceted impact of DMD.
Conclusions:
- Comprehensive care for DMD must address neurological, emotional, and cognitive aspects.
- Physicians need guidance on managing DMD-related issues.
- Further research is crucial to understand and mitigate DMD's full impact.
Abstract:
Duchenne's muscular dystrophy (DMD) is the most prevalent and devastating of neuromuscular disorders. Children given this diagnosis not only face inevitable deterioration of physical functioning, but they also become susceptible to emotional/behavioral problems, as well as reduced cognitive functioning and learning problems. This article (1) reviews the emotional/behavioral issues that may impact the child with DMD and the affected child's family members and caregivers; (2) examines the research describing the cognitive and learning issues associated with DMD; (3) provides recommendations for physicians who work with these families; and (4) recommends directions for future research that will help to further elucidate emotional/behavioral issues and cognitive and learning correlates of DMD.
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