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Related Experiment Videos

Informed consent: what do patients want to know?

P A Newton-Howes1, N D Bedford, B R Dobbs

  • 1Department of Surgery, Christchurch Hospital.

The New Zealand Medical Journal
|October 24, 1998
PubMed
Summary

Patients and surgeons have different priorities for informed consent. Patients value outcomes like quality of life, while doctors focus on procedure details and management. Understanding these differences improves patient communication.

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Area of Science:

  • Medical Ethics
  • Patient-Physician Communication
  • Surgical Consent

Background:

  • Informed consent is a cornerstone of ethical medical practice.
  • Understanding patient and physician perspectives on informed consent is crucial for effective communication.
  • Previous research has highlighted potential disparities in understanding informed consent elements.

Purpose of the Study:

  • To identify key aspects of informed consent valued by both patients and surgeons.
  • To pinpoint areas of agreement and disagreement between patients and surgeons regarding informed consent.
  • To inform medical practitioners about patient expectations during the informed consent process.

Main Methods:

  • A questionnaire was developed based on the Disability Commissioner's Regulations (1996).
Keywords:
Empirical ApproachProfessional Patient Relationship

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  • The survey was administered to 256 patients and 37 doctors at Christchurch Hospital.
  • Statistical analysis was used to identify significant differences in perceived importance.

    • Main Results:

    • Patients prioritized major risks, quality of life, outcome, consequences of non-treatment, and quantity of life.
    • Surgeons emphasized the general nature of the procedure, major risks, consequences of non-treatment, alternative options, and management implications.
    • Significant disparities were found in the perceived importance of technical details, cost, surgeon qualifications, experimental treatments, and the surgeon's personal willingness to undergo the procedure.

    Conclusions:

    • This study highlights distinct patient and surgeon priorities in informed consent.
    • Both groups agree on the importance of discussing serious risks (e.g., >1 in 1000 complications).
    • Patients focus on outcomes (quality/quantity of life), while surgeons focus on procedural aspects and management, guiding practitioners on patient-centered communication.