Hospice research: challenges, opportunities and rewards

Area of Science:

• Palliative Care
• Health Services Research
• Medical Ethics

Background:

• The National Hospice Study was crucial for establishing Medicare benefits and expanding hospice care in the U.S.
• Managed care and outcome measurement demands are increasing hospice involvement in research.
• Key aspects of hospice, such as quality of life and interdisciplinary support, are difficult to quantify.

Purpose of the Study:

• To discuss the challenges in conducting hospice research.
• To identify opportunities for hospice research through collaboration.
• To highlight the benefits and rewards of hospice research.

Main Methods:

• The article reviews ethical, organizational, psychosocial, and physical challenges in hospice research.
• It explores collaborative research opportunities with hospice teams, other institutions, and academic researchers.
• Case examples or discussions of successful research initiatives are implied.

Main Results:

• Hospice research presents unique difficulties related to measuring intangible aspects of care.
• Collaboration is essential for overcoming research barriers and expanding the scope of hospice studies.
• Engaging in research yields significant rewards for hospice providers and patients.

Conclusions:

• Despite challenges, hospice research is crucial for improving patient care and informing policy.
• Collaborative models can facilitate robust research within hospice settings.
• The rewards of hospice research include enhanced understanding, improved services, and professional growth.