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An ethnography of dementia
1Department of Sociology, Delhi School of Economics, Delhi University, India.
Culture, Medicine and Psychiatry
|December 2, 1998
Summary
This study explores the lived experiences of Alzheimer's Disease patients during institutionalization. It redefines patient "voice" beyond natural language to include embodied expressions, offering new sociological insights.
Area of Science:
- Sociology of Health and Illness
- Gerontology
- Disability Studies
Background:
- Limited sociological examination of dementia patient experiences.
- Focus on institutionalization as a critical juncture for patient experience.
Observation:
- Detailed examination of one Alzheimer's Disease patient's experiences during institutionalization.
- Analysis of the patient's "voice" and modes of expression.
Findings:
- Alzheimer's Disease patients can be considered experiencing subjects.
- Patient experience is not solely reliant on natural language expression.
- The concept of "voice" can be expanded to include embodied forms.
Implications:
- Challenges traditional notions of patient subjectivity and communication.
- Suggests new avenues for understanding and interacting with dementia sufferers.
- Highlights the importance of recognizing diverse forms of patient expression in healthcare and sociological contexts.