Voice of the victims--the key to consensus and support for alcoholism research

The US National Institute on Alcohol Abuse and Alcoholism (NIAAA) recognizes two forms of problematic drinking: 'willful alcohol abuse', a behavioural problem, and 'alcohol dependence', a true medical disorder, which includes a genetic component, that can be scientifically understood and medically treated. Current biomedical research has linked specific neurotransmitters to certain effects of alcohol that are unique to alcoholics. An inadequate flow of information between the victims of alcoholism, researchers, and the public has impeded further exploration of the genetic and neurochemical underpinnings of alcohol dependence. This is due in part to continuing misconceptions about alcohol dependence, not only among the general public, but within the scientific and medical communities as well. Consequently. compared to other diseases, research in alcohol dependence is proceeding with less urgency despite its relatively high economic and social costs. Incorporating the input of recovering alcoholics into future research agendas can help to ensure relevant scientific investigation and the delivery of a more accurate and consistent message to the public with regard to alcoholism.