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A research registry: uses, development, and accuracy

L L Roos1, J P Nicol

  • 1Manitoba Centre for Health Policy and Evaluation, Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada.

Journal of Clinical Epidemiology
|February 11, 1999
PubMed
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A population-based research registry accurately tracks health insurance status over time, distinguishing between well individuals, loss to follow-up, and mortality. This enables robust longitudinal health studies.

Area of Science:

  • Population health research
  • Clinical epidemiology
  • Health services research

Background:

  • Population-based research registries are crucial for longitudinal studies.
  • Existing cross-sectional registries have limited duration for health insurance status.
  • Registries can differentiate health system interactions, including mortality and loss to follow-up.

Purpose of the Study:

  • To describe the development and utility of the Manitoba research registry.
  • To highlight the registry's value for integrated population health information systems.
  • To demonstrate the registry's application in facilitating longitudinal health research.

Main Methods:

  • Utilized Manitoba Health data since 1970 under strict confidentiality.
  • Assigned unique identifiers to individuals and tracked family registration changes.

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  • Incorporated data on area of residence, marital status, and family characteristics.

    • Main Results:

    • The registry provides accurate, long-term health insurance status.
    • It effectively distinguishes between various individual statuses within the health system.
    • Data quality is equivalent to a daily census of the province.

    Conclusions:

    • The Manitoba research registry is a valuable tool for population health research.
    • It supports integrated health information systems and longitudinal study designs.
    • The registry enhances the effectiveness of health services research through detailed individual tracking.