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The Journal of Pediatrics
|
July 15, 2009
Pediatric biobanks: approaching informed consent for continuing research after children grow up
Aaron J Goldenberg, Sara Chandros Hull, Jeffrey R Botkin, et al.
The American Journal of Bioethics : AJOB
|
January 25, 2019
Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism
Nanibaa' A Garrison, Kyle B Brothers, Aaron J Goldenberg, et al.
American Journal of Human Genetics
|
November 6, 2020
Analogies in Genomics Policymaking: Debates and Drawbacks
John A Lynch, Aaron J Goldenberg, Nanibaa' A Garrison, et al.
The American Journal of Bioethics : AJOB
|
May 19, 2023
Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care
Meghan C Halley, Colin M E Halverson, Holly K Tabor, et al.
Journal of Genetic Counseling
|
March 25, 2014
Genomic counseling in the newborn period: experiences and views of genetic counselors
Monica D Nardini, Anne L Matthews, Shawn E McCandless, et al.
Pediatrics
|
December 5, 2012
Retention and research use of residual newborn screening bloodspots
Jeffrey R Botkin, Aaron J Goldenberg, Erin Rothwell, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
June 14, 2020
The limited use of US residual newborn screening dried bloodspots for health disparity research
Naomi O Riches, Erin P Johnson, Caren J Frost, et al.
Nature Genetics
|
March 8, 2022
A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States
Meghan C Halley, Hadley Stevens Smith, Euan A Ashley, et al.
AJOB Empirical Bioethics
|
September 9, 2024
Supporting Stewardship: Funding, Utilization, and Sustainability as Ethical Concerns in Networked Biobanking
R Jean Cadigan, Roselle Ponsaran, Carla Rich, et al.
Journal of Community Genetics
|
September 3, 2016
Biobank participant support of newborn screening for disorders with variable treatment and intervention options
Megan E Bunnell, Beth A Tarini, Michael Petros, et al.
Page
of 6
Search research articles
Search
Showing results (21-30 of 56) with videos related to
Sort By:
Page
of 6
The Journal of Pediatrics
|
July 15, 2009
Pediatric biobanks: approaching informed consent for continuing research after children grow up
Aaron J Goldenberg, Sara Chandros Hull, Jeffrey R Botkin, et al.
The American Journal of Bioethics : AJOB
|
January 25, 2019
Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism
Nanibaa' A Garrison, Kyle B Brothers, Aaron J Goldenberg, et al.
American Journal of Human Genetics
|
November 6, 2020
Analogies in Genomics Policymaking: Debates and Drawbacks
John A Lynch, Aaron J Goldenberg, Nanibaa' A Garrison, et al.
The American Journal of Bioethics : AJOB
|
May 19, 2023
Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care
Meghan C Halley, Colin M E Halverson, Holly K Tabor, et al.
Journal of Genetic Counseling
|
March 25, 2014
Genomic counseling in the newborn period: experiences and views of genetic counselors
Monica D Nardini, Anne L Matthews, Shawn E McCandless, et al.
Pediatrics
|
December 5, 2012
Retention and research use of residual newborn screening bloodspots
Jeffrey R Botkin, Aaron J Goldenberg, Erin Rothwell, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
June 14, 2020
The limited use of US residual newborn screening dried bloodspots for health disparity research
Naomi O Riches, Erin P Johnson, Caren J Frost, et al.
Nature Genetics
|
March 8, 2022
A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States
Meghan C Halley, Hadley Stevens Smith, Euan A Ashley, et al.
AJOB Empirical Bioethics
|
September 9, 2024
Supporting Stewardship: Funding, Utilization, and Sustainability as Ethical Concerns in Networked Biobanking
R Jean Cadigan, Roselle Ponsaran, Carla Rich, et al.
Journal of Community Genetics
|
September 3, 2016
Biobank participant support of newborn screening for disorders with variable treatment and intervention options
Megan E Bunnell, Beth A Tarini, Michael Petros, et al.
Page
of 6