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The Lancet. Global Health
|
June 14, 2024
Global health for rare diseases through primary care
Gareth Baynam, Adam L Hartman, Mary Catherine V Letinturier, et al.
Annals of Neurology
|
December 26, 2015
Response to treatment in a prospective national infantile spasms cohort
Kelly G Knupp, Jason Coryell, Katherine C Nickels, et al.
Neurology
|
February 10, 2017
Phase I/II multicenter ketogenic diet study for adult superrefractory status epilepticus
Mackenzie C Cervenka, Sara Hocker, Matthew Koenig, et al.
European Journal of Medical Genetics
|
October 7, 2024
Telehealth for rare disease care, research, and education across the globe: A review of the literature by the IRDiRC telehealth task force
Faye H Chen, Adam L Hartman, Mary Catherine V Letinturier, et al.
Therapeutic Advances in Rare Disease
|
March 26, 2026
Challenges and opportunities for the use of telehealth in rare disease diagnosis, treatment, research, and education: key opinion leader interviews by the IRDiRC telehealth task force
Melissa A Parisi, Adam L Hartman, Mary Catherine V Letinturier, et al.
Epilepsia
|
September 13, 2016
Response to second treatment after initial failed treatment in a multicenter prospective infantile spasms cohort
Kelly G Knupp, Erin Leister, Jason Coryell, et al.
Medrxiv : the Preprint Server for Health Sciences
|
February 5, 2024
GM1 Gangliosidosis Type II: Results of a 10-Year Prospective Study
Precilla D'Souza, Cristan Farmer, Jean Johnston, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
April 20, 2024
GM1 gangliosidosis type II: Results of a 10-year prospective study
Precilla D'Souza, Cristan Farmer, Jean M Johnston, et al.
The New England Journal of Medicine
|
January 16, 2020
A Randomized Trial of Erythropoietin for Neuroprotection in Preterm Infants
Sandra E Juul, Bryan A Comstock, Rajan Wadhawan, et al.
Annals of Neurology
|
October 9, 2018
KCTD7 deficiency defines a distinct neurodegenerative disorder with a conserved autophagy-lysosome defect
Kyle A Metz, Xinchen Teng, Isabelle Coppens, et al.
Page
of 9
Search research articles
Search
Showing results (71-80 of 81) with videos related to
Sort By:
Page
of 9
The Lancet. Global Health
|
June 14, 2024
Global health for rare diseases through primary care
Gareth Baynam, Adam L Hartman, Mary Catherine V Letinturier, et al.
Annals of Neurology
|
December 26, 2015
Response to treatment in a prospective national infantile spasms cohort
Kelly G Knupp, Jason Coryell, Katherine C Nickels, et al.
Neurology
|
February 10, 2017
Phase I/II multicenter ketogenic diet study for adult superrefractory status epilepticus
Mackenzie C Cervenka, Sara Hocker, Matthew Koenig, et al.
European Journal of Medical Genetics
|
October 7, 2024
Telehealth for rare disease care, research, and education across the globe: A review of the literature by the IRDiRC telehealth task force
Faye H Chen, Adam L Hartman, Mary Catherine V Letinturier, et al.
Therapeutic Advances in Rare Disease
|
March 26, 2026
Challenges and opportunities for the use of telehealth in rare disease diagnosis, treatment, research, and education: key opinion leader interviews by the IRDiRC telehealth task force
Melissa A Parisi, Adam L Hartman, Mary Catherine V Letinturier, et al.
Epilepsia
|
September 13, 2016
Response to second treatment after initial failed treatment in a multicenter prospective infantile spasms cohort
Kelly G Knupp, Erin Leister, Jason Coryell, et al.
Medrxiv : the Preprint Server for Health Sciences
|
February 5, 2024
GM1 Gangliosidosis Type II: Results of a 10-Year Prospective Study
Precilla D'Souza, Cristan Farmer, Jean Johnston, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
April 20, 2024
GM1 gangliosidosis type II: Results of a 10-year prospective study
Precilla D'Souza, Cristan Farmer, Jean M Johnston, et al.
The New England Journal of Medicine
|
January 16, 2020
A Randomized Trial of Erythropoietin for Neuroprotection in Preterm Infants
Sandra E Juul, Bryan A Comstock, Rajan Wadhawan, et al.
Annals of Neurology
|
October 9, 2018
KCTD7 deficiency defines a distinct neurodegenerative disorder with a conserved autophagy-lysosome defect
Kyle A Metz, Xinchen Teng, Isabelle Coppens, et al.
Page
of 9