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JMIR Research Protocols|May 25, 2017
Development of a Modular Research Platform to Create Medical Observational Studies for Mobile DevicesMartin Zens, Birgit Grotejohann, Adrian Tassoni, et al.
JMIR Mhealth and Uhealth|April 18, 2020
Evaluation of a Mobile Phone App for Patients With Pollen-Related Allergic Rhinitis: Prospective Longitudinal Field StudyManuela Glattacker, Martin Boeker, Robin Anger, et al.
Studies in Health Technology and Informatics|April 4, 2019
Establishing an Interoperable Clinical Trial Information System Within MIRACUMHanna Hasselblatt, Johanna Andrae, Adrian Tassoni, et al.
Orphanet Journal of Rare Diseases|October 24, 2013
The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseasesSunil Rodger, Hanns Lochmüller, Adrian Tassoni, et al.
Orphanet Journal of Rare Diseases|June 26, 2019
De-duplicating patient records from three independent data sources reveals the incidence of rare neuromuscular disorders in GermanyKirsten König, Astrid Pechmann, Simone Thiele, et al.
JMIR Research Protocols|July 1, 2016
A Registry for Evaluation of Efficiency and Safety of Surgical Treatment of Cartilage Defects: The German Cartilage Registry (KnorpelRegister DGOU)Julia Maurer, Birgit Grotejohann, Carolin Jenkner, et al.
Orphanet Journal of Rare Diseases|January 23, 2019
SMArtCARE - A platform to collect real-life outcome data of patients with spinal muscular atrophyAstrid Pechmann, Kirsten König, Günther Bernert, et al.
Journal of Neuromuscular Diseases|October 1, 2025
The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experienceNawel Lalout, Mark D Wilkinson, Dagmar Wandrei, et al.
Journal of Neuromuscular Diseases|December 3, 2016
European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent DifferencesJulia Vry, Kathrin Gramsch, Sunil Rodger, et al.
Brain : a Journal of Neurology|July 20, 2022
Effect of nusinersen on motor, respiratory and bulbar function in early-onset spinal muscular atrophyAstrid Pechmann, Max Behrens, Katharina Dörnbrack, et al.
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