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Psychology & Health|July 23, 2025
'I told them they had to get tested, and they did': social influence among siblings with Li-Fraumeni syndromeChloe O Huelsnitz, Allison Werner-Lin, Ashley S Thompson, et al.European Journal of Human Genetics : EJHG|October 1, 2024
Defining the complex needs of families with rare diseases-the example of telomere biology disordersCatherine Wilsnack, Camella J Rising, Emily E Pearce, et al.Health & Social Work|October 7, 2021
Family Identity and Roles in the Context of Li-Fraumeni Syndrome: "No One's Like Us Mutants"Catherine Wilsnack, Jennifer L Young, Shana L Merrill, et al.Psycho-Oncology|December 14, 2022
How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? "With Li-Fraumeni syndrome, it's just an intermission"Allison Werner-Lin, Rowan Forbes Shepherd, Camella J Rising, et al.Familial Cancer|September 10, 2025
Navigating disclosure in new romantic partnerships as an adolescent or young adult with Li-Fraumeni syndromeCamella J Rising, Chloe O Huelsnitz, Rowan Forbes Shepherd, et al.Journal of Adolescent and Young Adult Oncology|September 27, 2024
Relating to the Body Under Chronic Cancer Threat: Implications for Psychosocial Health Among Adolescents and Young Adults with Cancer Predisposition SyndromesCamella J Rising, Rowan Forbes Shepherd, Alix G Sleight, et al.Journal of Behavioral Medicine|April 20, 2024
Diet and physical activity behaviors: how are they related to illness perceptions, coping, and health-related quality of life in young people with hereditary cancer syndromes?Camella J Rising, Chloe O Huelsnitz, Rowan Forbes Shepherd, et al.Family Process|October 25, 2019
Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across GenerationsAshley Pantaleao, Jennifer L Young, Norman B Epstein, et al.Journal of Psychosocial Oncology|December 29, 2018
Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independenceJennifer L Young, Ashley Pantaleao, Lori Zaspel, et al.European Journal of Human Genetics : EJHG|November 23, 2025
Concerns about the consequences of cancer predisposition and relationships with quality of life in young adults with Li-Fraumeni syndromeRowan Forbes Shepherd, Camella J Rising, Richard P Moser, et al.Pageof 6