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Research Involvement and Engagement|January 27, 2024
Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviewsAmanda Wurz, Kelsey Ellis, Julia Nordlund, et al.
Campbell Systematic Reviews|June 12, 2026
PROTOCOL: Comparative Effectiveness of Tools for Communicating Health Research Results to Study Participants and Others With Relevant Lived Experience: A Living Systematic Review of Randomized Controlled TrialsElsa-Lynn Nassar, Claire E Adams, Danielle B Rice, et al.
JMIR Research Protocols|May 29, 2026
Moving Forward Together: A Protocol to Co-Adapt and Scale a Videoconference-Delivered Physical Activity Intervention for Children and Adolescents Diagnosed With Cancer or Blood Disorders in British Columbia, Ontario, and the Maritime ProvincesAmanda Wurz, Lauren Ha, Vanessa Sales, et al.
Journal of Psychosomatic Research|March 20, 2024
The association of resilience and positive mental health in systemic sclerosis: A Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional studyMarieke A Neyer, Richard S Henry, Marie-Eve Carrier, et al.
Orphanet Journal of Rare Diseases|October 29, 2022
Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups: a two-arm parallel partially nested randomised controlled trialBrett D Thombs, Brooke Levis, Marie-Eve Carrier, et al.
Disability and Rehabilitation|January 28, 2023
A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team membersAmanda Wurz, Delaney Duchek, Kelsey Ellis, et al.
Translational Behavioral Medicine|March 31, 2023
Exploring research team members' and trial participants' perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: a qualitative interview studyAmanda Wurz, Kelsey Ellis, Delaney Duchek, et al.
Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer|September 11, 2023
Physical activity and physical fitness assessments in adolescents and young adults diagnosed with cancer: a scoping reviewMaxime Caru, Amanda Wurz, Jennifer Brunet, et al.
The Lancet. Rheumatology|April 26, 2021
Effects of a multi-faceted education and support programme on anxiety symptoms among people with systemic sclerosis and anxiety during COVID-19 (SPIN-CHAT): a two-arm parallel, partially nested, randomised, controlled trialBrett D Thombs, Linda Kwakkenbos, Brooke Levis, et al.
Trials|November 28, 2021
The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trialJulia Nordlund, Richard S Henry, Linda Kwakkenbos, et al.
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