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European Journal of Human Genetics : EJHG
|
September 19, 2019
Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database
Stéphanie Nguengang Wakap, Deborah M Lambert, Annie Olry, et al.
Orphanet Journal of Rare Diseases
|
January 27, 2024
Coding undiagnosed rare disease patients in health information systems: recommendations from the RD-CODE project
Céline Angin, Monica Mazzucato, Stefanie Weber, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
May 6, 2020
Phenotate: crowdsourcing phenotype annotations as exercises in undergraduate classes
Willie H Chang, Pouria Mashouri, Alexander X Lozano, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
June 20, 2020
Correction: Phenotate: crowdsourcing phenotype annotations as exercises in undergraduate classes
Willie H Chang, Pouria Mashouri, Alexander X Lozano, et al.
European Journal of Human Genetics : EJHG
|
November 5, 2023
Phenotypic similarity-based approach for variant prioritization for unsolved rare disease: a preliminary methodological report
David Lagorce, Emeline Lebreton, Leslie Matalonga, et al.
European Journal of Medical Genetics
|
February 10, 2018
Harmonising phenomics information for a better interoperability in the rare disease field
Sylvie Maiella, Annie Olry, Marc Hanauer, et al.
Trials
|
August 3, 2017
Barriers to the conduct of randomised clinical trials within all disease areas
Snezana Djurisic, Ana Rath, Sabrina Gaber, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
September 23, 2016
The collective impact of rare diseases in Western Australia: an estimate using a population-based cohort
Caroline E Walker, Trinity Mahede, Geoff Davis, et al.
JMIR Medical Informatics
|
July 8, 2026
The Orphanet Nomenclature and Classification of Rare Diseases for Improved Patient Recognition and Data Interoperability: Qualitative and Quantitative Analysis
Caterina Lucano, David Lagorce, Annie Olry, et al.
Studies in Health Technology and Informatics
|
September 16, 2010
CEMARA an information system for rare diseases
Paul Landais, Claude Messiaen, Ana Rath, et al.
Page
of 5
Search research articles
Search
Showing results (11-20 of 46) with videos related to
Sort By:
Page
of 5
European Journal of Human Genetics : EJHG
|
September 19, 2019
Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database
Stéphanie Nguengang Wakap, Deborah M Lambert, Annie Olry, et al.
Orphanet Journal of Rare Diseases
|
January 27, 2024
Coding undiagnosed rare disease patients in health information systems: recommendations from the RD-CODE project
Céline Angin, Monica Mazzucato, Stefanie Weber, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
May 6, 2020
Phenotate: crowdsourcing phenotype annotations as exercises in undergraduate classes
Willie H Chang, Pouria Mashouri, Alexander X Lozano, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
June 20, 2020
Correction: Phenotate: crowdsourcing phenotype annotations as exercises in undergraduate classes
Willie H Chang, Pouria Mashouri, Alexander X Lozano, et al.
European Journal of Human Genetics : EJHG
|
November 5, 2023
Phenotypic similarity-based approach for variant prioritization for unsolved rare disease: a preliminary methodological report
David Lagorce, Emeline Lebreton, Leslie Matalonga, et al.
European Journal of Medical Genetics
|
February 10, 2018
Harmonising phenomics information for a better interoperability in the rare disease field
Sylvie Maiella, Annie Olry, Marc Hanauer, et al.
Trials
|
August 3, 2017
Barriers to the conduct of randomised clinical trials within all disease areas
Snezana Djurisic, Ana Rath, Sabrina Gaber, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
September 23, 2016
The collective impact of rare diseases in Western Australia: an estimate using a population-based cohort
Caroline E Walker, Trinity Mahede, Geoff Davis, et al.
JMIR Medical Informatics
|
July 8, 2026
The Orphanet Nomenclature and Classification of Rare Diseases for Improved Patient Recognition and Data Interoperability: Qualitative and Quantitative Analysis
Caterina Lucano, David Lagorce, Annie Olry, et al.
Studies in Health Technology and Informatics
|
September 16, 2010
CEMARA an information system for rare diseases
Paul Landais, Claude Messiaen, Ana Rath, et al.
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of 5