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Plos One|October 24, 2019
Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disabilityLauren A McCormack, Amanda Wylie, Rebecca Moultrie, et al.American Journal on Intellectual and Developmental Disabilities|November 9, 2017
Attendance at Fragile X Specialty Clinics: Facilitators and BarriersSharon A Kidd, Melissa Raspa, Renée Clark, et al.Journal of Autism and Developmental Disorders|March 3, 2019
Decisional Capacity for Informed Consent in Males and Females with Fragile X SyndromeAnne C Wheeler, Amanda Wylie, Melissa Raspa, et al.Journal of the American Medical Informatics Association : JAMIA|January 9, 2020
"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health recordSara M Andrews, Melissa Raspa, Anne Edwards, et al.American Journal of Mental Retardation : AJMR|October 17, 2003
Adaptive behavior in children with fragile X syndromeDeborah D Hatton, Anne C Wheeler, Martie L Skinner, et al.Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research|January 7, 2026
Developing Meaningful Score Differences for the Bayley-4 and Vineland-3 in Angelman Syndrome using a Delphi PanelSonya Powers, Katherine N Anderson, Wen-Hann Tan, et al.Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research|November 29, 2020
Preferences for Accessing Electronic Health Records for Research Purposes: Views of Parents Who Have a Child With a Known or Suspected Genetic ConditionMelissa Raspa, Ryan S Paquin, Derek S Brown, et al.Child: Care, Health and Development|December 10, 2024
Assessment of Affordances in the Home Environment and Neurodevelopment of Children With Congenital Zika SyndromeRaíne Borba, Juliane Falcão, Tatiane Freitas, et al.Plos One|July 27, 2018
Skills attained by infants with congenital Zika syndrome: Pilot data from BrazilAnne C Wheeler, Camila V Ventura, Ty Ridenour, et al.Journal of Intellectual Disability Research : JIDR|September 2, 2025
Parental Stress and Family Quality of Life in Families of Individuals Living With Angelman SyndromeCatherine Merton, Angela Gwaltney, Anna Booman, et al.Pageof 6