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Dysphagia|September 15, 2010
Dysphagia in Huntington's disease: a reviewAnne-Wil Heemskerk, Raymond A C RoosPlos Currents|March 30, 2012
Aspiration pneumonia and death in Huntington's diseaseAnne-Wil Heemskerk, Raymund A C RoosMovement Disorders : Official Journal of the Movement Disorder Society|May 28, 2014
The Huntington's Disease Dysphagia ScaleAnne-Wil Heemskerk, Berit M Verbist, Johan Marinus, et al.BMC Palliative Care|May 3, 2023
Palliative care in advanced Huntington's disease: a scoping reviewDorine J Boersema-Wijma, Erik van Duijn, Anne-Wil Heemskerk, et al.Orphanet Journal of Rare Diseases|November 29, 2024
Shifting focus from ideality to reality: a qualitative study on how quality of life is defined by premanifest and manifest Huntington's disease gene expansion carriersPearl J C van Lonkhuizen, Anne-Wil Heemskerk, Leanne Slutter, et al.Journal of Neurology|January 30, 2023
Quality of life, health-related quality of life, and associated factors in Huntington's disease: a systematic reviewPearl J C van Lonkhuizen, Wiebke Frank, Anne-Wil Heemskerk, et al.Frontiers in Neurology|July 16, 2024
Development of the Huntington Support App (HD-eHelp study): a human-centered and co-design approachPearl J C van Lonkhuizen, Anne-Wil Heemskerk, Eline Meijer, et al.Frontiers in Neurology|September 30, 2021
Study Protocol for the Development of a European eHealth Platform to Improve Quality of Life in Individuals With Huntington's Disease and Their Partners (HD-eHelp Study): A User-Centered Design ApproachPearl J C van Lonkhuizen, Niko J H Vegt, Eline Meijer, et al.Journal of Neurology|June 11, 2026
Development and validation of the first needs-based quality of life measure for individuals with manifest Huntington's diseaseIsobel Spray, Mariusz T Grzeda, Jeanette Thorpe, et al.Pageof 1