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Journal of Developmental and Physical Disabilities|October 2, 2015
Pain experience and expression in Rett syndrome: Subjective and objective measurement approachesChantel C Barney, Timothy Feyma, Arthur Beisang, et al.The Clinical Journal of Pain|July 10, 2013
Parent-reported pain in Rett syndromeFrank J Symons, Breanne Byiers, Raymond C Tervo, et al.Annals of the Child Neurology Society|August 7, 2026
Expert Consensus on Real-World Use of Trofinetide for Rett Syndrome Using a Modified Delphi MethodErin O'Connor Prange, Arthur Beisang, Davut Pehlivan, et al.Orphanet Journal of Rare Diseases|May 13, 2022
Healthcare access, satisfaction, and health-related quality of life among children and adults with rare diseasesKathleen Bogart, Amanda Hemmesch, Erica Barnes, et al.Intellectual and Developmental Disabilities|February 4, 2020
Special Education Supports and Services for Rett Syndrome: Parent Perceptions and SatisfactionKelsey Larriba-Quest, Breanne J Byiers, Arthur Beisang, et al.Pediatric Neurology|May 25, 2015
Infrared Thermal Analysis and Individual Differences in Skin Temperature Asymmetry in Rett SyndromeFrank J Symons, Breanne Byiers, John Hoch, et al.Expert Review of Gastroenterology & Hepatology|June 13, 2024
Recommendations for the management of gastrointestinal comorbidities with or without trofinetide use in Rett syndromeKathleen J Motil, Arthur Beisang, Constance Smith-Hicks, et al.Pediatric Neurology|October 2, 2017
A Double-Blind, Randomized, Placebo-Controlled Clinical Study of Trofinetide in the Treatment of Rett SyndromeDaniel G Glaze, Jeffrey L Neul, Alan Percy, et al.Journal of Child Neurology|April 22, 2015
Improving Treatment Trial Outcomes for Rett Syndrome: The Development of Rett-specific Anchors for the Clinical Global Impression ScaleJeffrey L Neul, Daniel G Glaze, Alan K Percy, et al.Paediatric Anaesthesia|February 9, 2017
A case-controlled comparison of postoperative analgesic dosing between girls with Rett syndrome and girls with and without developmental disability undergoing spinal fusion surgeryChantel C Barney, Alyssa M Merbler, Kelsey Quest, et al.Pageof 2