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Journal of Palliative Medicine|September 16, 2020
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis: Cystic Fibrosis Foundation Evidence-Informed Consensus GuidelinesDio Kavalieratos, Anna M Georgiopoulos, Lara Dhingra, et al.The Journal of Pediatrics|February 21, 2017
Outcomes of Lung Transplantation for Infants and Children with Genetic Disorders of Surfactant MetabolismWhitney B Eldridge, Qunyuan Zhang, Albert Faro, et al.Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society|October 2, 2024
Linkage of the CF Foundation Patient Registry with the Scientific Registry of Transplant Recipients databaseElizabeth A Cromwell, Yoon Son Ahn, Patrick J Johnson, et al.Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society|August 16, 2022
Prevalence of unmet pain and symptom management needs in adults with cystic fibrosisEthan Dubin, Jane Lowers, Elisabeth P Dellon, et al.Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society|June 1, 2023
Clinician perspectives on barriers and solutions to symptom management in cystic fibrosisNatalia Smirnova, Elizabeth T Trandel, Ethan Dubin, et al.Clinical Transplantation|July 13, 2020
Incorporating patient and caregiver feedback into lung transplant referral guidelines for individuals with cystic fibrosis-Preliminary findings from a novel paradigmPatrick J Smith, Jordan M Dunitz, Amy Lucy, et al.Annals of Epidemiology|August 7, 2023
Impact of loss to follow-up on survival estimation for cystic fibrosisJoshua S Ostrenga, A Whitney Brown, Jonathan V Todd, et al.Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society|March 15, 2023
Cystic fibrosis prevalence in the United States and participation in the Cystic Fibrosis Foundation Patient Registry in 2020Elizabeth A Cromwell, Joshua S Ostrenga, Jonathan V Todd, et al.Annals of the American Thoracic Society|June 18, 2024
Forced Expiratory Volume in 1 Second Variability Predicts Lung Transplant or Mortality in People with Cystic Fibrosis in the United StatesJonathan V Todd, Wayne J Morgan, Rhonda D Szczesniak, et al.Canadian Respiratory Journal|July 15, 2025
Validating the Data Completeness and Accuracy of the Canadian Cystic Fibrosis RegistryRanjani Somayaji, Stephanie Y Cheng, Noma Abdulrahem, et al.Pageof 8