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Clinical Genetics|March 9, 2019
Uncertainty, hope, and coping efficacy among mothers of children with Duchenne/Becker muscular dystrophyMegan Bell, Barbara B Biesecker, Joann Bodurtha, et al.Journal of Genetic Counseling|February 8, 2014
Teaching genomic counseling: preparing the genetic counseling workforce for the genomic eraGillian W Hooker, Kelly E Ormond, Kevin Sweet, et al.Ethics & Human Research|July 1, 2021
Enrolling Children in Clinical Trials for Genetic Neurodevelopmental Conditions: Ethics, Parental Decisions, and Children's IdentitiesErin Turbitt, Ainsley J Newson, Barbara B Biesecker, et al.Clinical Trials (London, England)|December 7, 2013
Expectations and experiences of investigators and parents involved in a clinical trial for Duchenne/Becker muscular dystrophyHolly L Peay, Aad Tibben, Tyler Fisher, et al.American Journal of Medical Genetics. Part C, Seminars in Medical Genetics|October 28, 2006
Uncertainty and perceived personal control among parents of children with rare chromosome conditions: the role of genetic counselingShawn E Lipinski, Michael J Lipinski, Leslie G Biesecker, et al.Behavioral and Brain Functions : BBF|October 29, 2010
Exploration of transitional life events in individuals with Friedreich ataxia: implications for genetic counselingV Brook White, Jennifer R Leib, Jennifer M Farmer, et al.Prenatal Diagnosis|December 10, 2003
Living with achondroplasia: attitudes toward population screening and correlation with quality of lifeSarah E Gollust, Richard E Thompson, Holly C Gooding, et al.American Journal of Medical Genetics. Part A|June 20, 2012
Factors associated with perceived uncertainty among parents of children with undiagnosed medical conditionsAnne C Madeo, Kathleen E O'Brien, Barbara A Bernhardt, et al.American Journal of Medical Genetics. Part A|July 29, 2003
Living with achondroplasia in an average-sized world: an assessment of quality of lifeSarah E Gollust, Richard E Thompson, Holly C Gooding, et al.American Journal of Medical Genetics|October 12, 2002
The decision to continue: the experiences and needs of parents who receive a prenatal diagnosis of holoprosencephalyKrista Redlinger-Grosse, Barbara A Bernhardt, Kate Berg, et al.Pageof 11