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Genetics in Medicine : Official Journal of the American College of Medical Genetics|August 4, 2017
Reactions to clinical reinterpretation of a gene variant by participants in a sequencing studyJennifer M Taber, William M P Klein, Katie L Lewis, et al.Clinical Genetics|May 26, 2022
Further validation of the Perceptions of Uncertainties in Genome Sequencing scale among patients with cancer undergoing tumor sequencingKendall L Umstead, Rachel Campbell, Christine E Napier, et al.Journal of Genetic Counseling|May 26, 2023
Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?"Beth Lincoln-Boyea, Rebecca R Moultrie, Barbara B Biesecker, et al.Health Psychology : Official Journal of the Division of Health Psychology, American Psychological Association|October 15, 2014
Dispositional optimism and perceived risk interact to predict intentions to learn genome sequencing resultsJennifer M Taber, William M P Klein, Rebecca A Ferrer, et al.European Journal of Human Genetics : EJHG|June 24, 2021
Parent clinical trial priorities for fragile X syndrome: a best-worst scalingErin Turbitt, Celeste D'Amanda, Sarah Hyman, et al.Journal of Genetic Counseling|September 8, 2017
Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling InterventionChristy Haakonsen Smith, Erin Turbitt, John Muschelli, et al.Clinical Trials (London, England)|February 25, 2018
Barriers and facilitators to clinical trial participation among parents of children with pediatric neuromuscular disordersHolly L Peay, Barbara B Biesecker, Benjamin S Wilfond, et al.Plos One|July 18, 2015
Characterizing Participants in the ClinSeq Genome Sequencing Cohort as Early Adopters of a New Health TechnologyKatie L Lewis, Paul K J Han, Gillian W Hooker, et al.Psychology & Health|June 11, 2011
Modelling decisions to undergo genetic testing for susceptibility to common health conditions: an ancillary study of the Multiplex InitiativeChristopher H Wade, Shoshana Shiloh, Samuel W Woolford, et al.Genetics in Medicine : Official Journal of the American College of Medical Genetics|May 31, 2014
How do research participants perceive "uncertainty" in genome sequencing?Barbara B Biesecker, William Klein, Katie L Lewis, et al.Pageof 11