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BMJ Open|August 11, 2018
Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaireChatree Chai-Adisaksopha, Mark W Skinner, Randall Curtis, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|March 4, 2024
Test-retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) studyRandall Curtis, Joanne Wu, Alfonso Iorio, et al.Journal of Thrombosis and Haemostasis : JTH|January 19, 2021
Core data set on safety, efficacy, and durability of hemophilia gene therapy for a global registry: Communication from the SSC of the ISTHBarbara Konkle, Glen Pierce, Donna Coffin, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|December 7, 2018
Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domainsChatree Chai-Adisaksopha, Mark W Skinner, Randall Curtis, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|March 13, 2019
Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) studyChatree Chai-Adisaksopha, Mark W Skinner, Randall Curtis, et al.Research and Practice in Thrombosis and Haemostasis|October 20, 2021
Recombinant factor IX-Fc fusion protein in severe hemophilia B: Patient-reported outcomes and health-related quality of lifeMairead O'Donovan, Eimear Quinn, Kate Johnston, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|June 5, 2020
The World Federation of Hemophilia Annual Global Survey 1999-2018Jeffrey S Stonebraker, Paula H B Bolton-Maggs, Mark Brooker, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|October 4, 2022
Physical activity, physical fitness and cardiometabolic risk amongst adults with moderate and severe haemophiliaMegan Kennedy, Sheila Roche, Mark McGowan, et al.Haematologica|May 30, 2020
Kreuth V initiative: European consensus proposals for treatment of hemophilia using standard products, extended half-life coagulation factor concentrates and non-replacement therapiesFlora Peyvandi, Karin Berger, Rainer Seitz, et al.Journal of Thrombosis and Haemostasis : JTH|September 13, 2024
The management of liver disease in people with congenital bleeding disorders: guidance from European Association for Haemophilia and Allied Disorders, European Haemophilia Consortium, ISTH, and World Federation of HemophiliaVincenzo La Mura, Massimo Colombo, Graham R Foster, et al.Pageof 6