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Muscle & Nerve|January 26, 2019
The myotonic dystrophy health index: Japanese adaption and validity testingItsuki Mori, Haruo Fujino, Tsuyoshi Matsumura, et al.Neurology|July 13, 2012
Patient-reported impact of symptoms in myotonic dystrophy type 1 (PRISM-1)Chad Heatwole, Rita Bode, Nicholas Johnson, et al.The Journal of Rheumatology|January 15, 2024
Patient-Reported Impact of Symptoms in Fibromyalgia (PRISM-FM)Jennifer Weinstein, Spencer Rosero, Jamison Seabury, et al.Journal of Parkinson'S Disease|March 19, 2026
The Parkinson's Disease-Health Index: A novel, disease-specific patient-reported outcome measureJamison Seabury, Jennifer Weinstein, Spencer Rosero, et al.Muscle & Nerve|January 13, 2018
Myotonic dystrophy patient preferences in patient-reported outcome measuresChad Heatwole, Nicholas Johnson, Jeanne Dekdebrun, et al.Muscle & Nerve|July 8, 2026
Development and Validation of a Novel, Disease-Specific, Caregiver-Reported Outcome Measure: The Duchenne Muscular Dystrophy Caregiver Reported-Health Index (DMDCR-HI)Charlotte Engebrecht, Spencer Rosero, Jennifer Weinstein, et al.Muscle & Nerve|November 26, 2025
Development and Validation of a Disease-Specific, Patient-Reported Outcome Measure: The Myotonic Dystrophy Type 2 Health IndexCharlotte Engebrecht, Spencer Rosero, Jennifer Weinstein, et al.Journal of Child Neurology|December 20, 2022
Disease Burden in Children With Spinal Muscular Atrophy: Results From a Large Cross-Sectional StudySpencer Rosero, Jennifer Weinstein, Jamison Seabury, et al.Annals of Neurology|July 18, 2018
The Charcot-Marie-Tooth Health Index: Evaluation of a Patient-Reported OutcomeNicholas E Johnson, Chad Heatwole, Peter Creigh, et al.Muscle & Nerve|January 8, 2024
A longitudinal study of disease progression in facioscapulohumeral muscular dystrophy (FSHD)Anika Varma, Michael S Todinca, Katy Eichinger, et al.Pageof 7