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Neurology|June 17, 2016
Disease burden and functional outcomes in congenital myotonic dystrophy: A cross-sectional studyNicholas E Johnson, Russell Butterfield, Kiera Berggren, et al.Muscle & Nerve|July 13, 2019
Patient-reported study of the impact of pediatric-onset myotonic dystrophyMichael Hunter, Anne-Berit Ekstrom, Craig Campbell, et al.Muscle & Nerve|May 9, 2024
Patient- and caregiver-reported impact of symptoms in Duchenne muscular dystrophySpencer Rosero, Jennifer Weinstein, Jamison Seabury, et al.Neuromuscular Disorders : NMD|December 28, 2021
Patient reported quality of life in limb girdle muscular dystrophyLaurel V Kovalchick, Kameron Bates, Jeffrey Statland, et al.Neuromuscular Disorders : NMD|February 15, 2013
Reevaluating measures of disease progression in facioscapulohumeral muscular dystrophyJeffrey M Statland, Michael P McDermott, Chad Heatwole, et al.The American Journal of Gastroenterology|July 18, 2023
P047 The Crohn's Disease-Health Index (CD-HI): Development and Validation of a Novel, Disease-Specific Patient Reported Outcome Measure for Clinical TrialsJamison Seabury, Jennifer Weinstein, Spencer Rosero, et al.Disability and Rehabilitation|May 17, 2023
The facioscapulohumeral muscular dystrophy - health index: Italian validation of a disease-specific measure of symptomatic burdenElena Carraro, Lucia Catherine Greco, Andrea Lizio, et al.Journal of Clinical Neuromuscular Disease|June 2, 2026
Development and Validation of the Inclusion Body Myositis-Health Index: A Disease-Specific Patient-Reported Outcome Measure for Use in Clinical Trials and Drug-Labeling ClaimsCharlotte Irwin, Spencer Rosero, Jamison Seabury, et al.The American Journal of Gastroenterology|November 14, 2022
Patient-Reported Impact of Symptoms in Crohn's DiseaseAnika Varma, Jennifer Weinstein, Jamison Seabury, et al.Muscle & Nerve|August 23, 2023
The Facioscapulohumeral Muscular Dystrophy-Health Index: Development and evaluation of a disease-specific outcome measureAnika Varma, Jennifer Weinstein, Jamison Seabury, et al.Pageof 7