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Journal of the Peripheral Nervous System : JPNS|June 9, 2020
Validation of the Italian version of the Charcot-Marie-Tooth Health IndexChiara Pisciotta, Emma Ciafaloni, Riccardo Zuccarino, et al.Journal of Clinical Gastroenterology|January 26, 2024
The Crohn's Disease-Health Index: Development and Evaluation of a Novel Outcome MeasureAnika Varma, Jennifer Weinstein, Jamison Seabury, et al.Muscle & Nerve|January 31, 2018
Facioscapulohumeral muscular dystrophy functional composite outcome measureKaty Eichinger, Chad Heatwole, Stanley Iyadurai, et al.Translational Lung Cancer Research|August 14, 2023
Patient-reported impact of symptoms in lung cancer (PRISM-LC)Anika Varma, Jennifer Weinstein, Jamison Seabury, et al.Neuromuscular Disorders : NMD|March 11, 2026
A prospective, multi-center, observational study of the safety, tolerability and effectiveness of Nusinersen in adult patients with spinal muscular atrophyCraig M Zaidman, Crystal Proud, Bing M Liao, et al.Orphanet Journal of Rare Diseases|March 20, 2024
Patient-reported impact of symptoms in adrenoleukodystrophy (PRISM-ALD)Anika Varma, Jennifer Weinstein, Jamison Seabury, et al.Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration|May 13, 2020
Understanding the needs of people with ALS: a national survey of patients and caregiversKate T Brizzi, John F P Bridges, Jill Yersak, et al.Muscle & Nerve|October 22, 2013
Myotonic Dystrophy Health Index: initial evaluation of a disease-specific outcome measureChad Heatwole, Rita Bode, Nicholas Johnson, et al.Neurology. Clinical Practice|October 5, 2019
Consensus-based care recommendations for adults with myotonic dystrophy type 2Benedikt Schoser, Federica Montagnese, Guillaume Bassez, et al.Therapeutic Innovation & Regulatory Science|September 19, 2018
Patient-Centered Therapy Development for Myotonic Dystrophy: Report of the Myotonic Dystrophy Foundation-Sponsored WorkshopSharon Hesterlee, Shashi Amur, Lisa J Bain, et al.Pageof 7