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Charlotte von der Lippe

Showing results (1-10 of 33) with videos related to

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Orphanet Journal of Rare Diseases|October 17, 2022
Children with a rare congenital genetic disorder: a systematic review of parent experiencesCharlotte von der Lippe, Ingrid Neteland, Kristin Billaud Feragen
European Journal of Medical Genetics|January 24, 2020
Caring for a child with Bardet-Biedl syndrome: A qualitative study of the parental experiences of daily coping and supportDeniz Zelihić, Finn R Hjardemaal, Charlotte von der Lippe
Molecular Genetics & Genomic Medicine|November 28, 2017
Living with a rare disorder: a systematic review of the qualitative literatureCharlotte von der Lippe, Plata S Diesen, Kristin B Feragen
Qualitative Health Research|November 4, 2020
Primary Immunodeficiency Diseases and Gastrointestinal Distress: Coping Strategies and Dietary Experiences to Relieve SymptomsKatrine K Brede, Margareta Wandel, Ingrid Wiig, et al.
Health Psychology Open|November 10, 2025
Health care professionals' experiences of caring for children with severe epidermolysis bullosaElisabeth Daae, Kristin Billaud Feragen, Terje Nærland, et al.
Orphanet Journal of Rare Diseases|December 28, 2024
When care hurts: parents' experiences of caring for a child with epidermolysis bullosaElisabeth Daae, Kristin Billaud Feragen, Terje Naerland, et al.
Journal of Genetic Counseling|March 8, 2016
Experiences of Being Heterozygous for Fabry Disease: a Qualitative StudyCharlotte von der Lippe, Jan C Frich, Anna Harris, et al.
Pediatric Blood & Cancer|July 30, 2016
Treatment of hemophilia: A qualitative study of mothers' perspectivesCharlotte von der Lippe, Jan C Frich, Anna Harris, et al.
Journal of Genetic Counseling|May 27, 2017
"It was a lot Tougher than I Thought It would be". A Qualitative Study on the Changing Nature of Being a Hemophilia CarrierCharlotte von der Lippe, Jan C Frich, Anna Harris, et al.
Health Psychology and Behavioral Medicine|April 11, 2022
It's more than just lubrication of the skin: parents' experiences of caring for a child with ichthyosisElisabeth Daae, Kristin Billaud Feragen, Jan C Sitek, et al.
Pageof 4

Showing results (1-10 of 33) with videos related to

Sort By:
Pageof 4
Orphanet Journal of Rare Diseases|October 17, 2022
Children with a rare congenital genetic disorder: a systematic review of parent experiencesCharlotte von der Lippe, Ingrid Neteland, Kristin Billaud Feragen
European Journal of Medical Genetics|January 24, 2020
Caring for a child with Bardet-Biedl syndrome: A qualitative study of the parental experiences of daily coping and supportDeniz Zelihić, Finn R Hjardemaal, Charlotte von der Lippe
Molecular Genetics & Genomic Medicine|November 28, 2017
Living with a rare disorder: a systematic review of the qualitative literatureCharlotte von der Lippe, Plata S Diesen, Kristin B Feragen
Qualitative Health Research|November 4, 2020
Primary Immunodeficiency Diseases and Gastrointestinal Distress: Coping Strategies and Dietary Experiences to Relieve SymptomsKatrine K Brede, Margareta Wandel, Ingrid Wiig, et al.
Health Psychology Open|November 10, 2025
Health care professionals' experiences of caring for children with severe epidermolysis bullosaElisabeth Daae, Kristin Billaud Feragen, Terje Nærland, et al.
Orphanet Journal of Rare Diseases|December 28, 2024
When care hurts: parents' experiences of caring for a child with epidermolysis bullosaElisabeth Daae, Kristin Billaud Feragen, Terje Naerland, et al.
Journal of Genetic Counseling|March 8, 2016
Experiences of Being Heterozygous for Fabry Disease: a Qualitative StudyCharlotte von der Lippe, Jan C Frich, Anna Harris, et al.
Pediatric Blood & Cancer|July 30, 2016
Treatment of hemophilia: A qualitative study of mothers' perspectivesCharlotte von der Lippe, Jan C Frich, Anna Harris, et al.
Journal of Genetic Counseling|May 27, 2017
"It was a lot Tougher than I Thought It would be". A Qualitative Study on the Changing Nature of Being a Hemophilia CarrierCharlotte von der Lippe, Jan C Frich, Anna Harris, et al.
Health Psychology and Behavioral Medicine|April 11, 2022
It's more than just lubrication of the skin: parents' experiences of caring for a child with ichthyosisElisabeth Daae, Kristin Billaud Feragen, Jan C Sitek, et al.
Pageof 4