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Journal of Patient-Reported Outcomes|March 24, 2026
The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagementKaren L Shaw, Sarah E Hughes, Olalekan L Aiyegbusi, et al.
Implementation Science : IS|November 17, 2018
A realist process evaluation within the Facilitating Implementation of Research Evidence (FIRE) cluster randomised controlled international trial: an exemplarJo Rycroft-Malone, Kate Seers, Ann Catrine Eldh, et al.
BMJ Open|March 29, 2024
Protocol for a mixed-methods study to develop and feasibility test a digital system for the capture of patient-reported outcomes (PROs) in patients receiving chimeric antigen receptor T-cell (CAR-T) therapies (the PRO-CAR-T study)Sarah E Hughes, Christel McMullan, Olalekan Lee Aiyegbusi, et al.
BMJ (Clinical Research Ed.)|April 28, 2022
Development and validation of the symptom burden questionnaire for long covid (SBQ-LC): Rasch analysisSarah E Hughes, Shamil Haroon, Anuradhaa Subramanian, et al.
Eclinicalmedicine|June 13, 2025
Measure selection for an electronic patient-reported outcome (ePRO) system for CAR T-cell therapy patients: a modified Delphi consensus studySarah E Hughes, Foram Khatsuria, Christel McMullan, et al.
Scientific Reports|September 27, 2024
Key considerations for digital decentralised clinical trials from a feasibility study assessing pacing interventions for long COVIDChristel McMullan, Shamil Haroon, Grace Turner, et al.
Scientific Reports|April 25, 2025
Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventionsChristel McMullan, Shamil Haroon, Grace Turner, et al.
BMC Public Health|July 3, 2026
Self-management of long COVID symptoms with over-the-counter medicines and other non-prescribed therapies: a cross-sectional surveyNaijie Guan, Grace Turner, Richard Hotham, et al.
BMJ Open|April 12, 2022
Non-pharmacological therapies for postviral syndromes, including Long COVID: a systematic review and meta-analysis protocolJoht Singh Chandan, Kirsty Brown, Nikita Simms-Williams, et al.
Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research|March 20, 2026
Designing and Implementing Real World Patient Reported Outcomes (RW- PROs) - Emerging Recommendations: A Good Practices Report of an ISPOR Task ForceAngela J Rylands, Konrad Maruszczyk, Olalekan Lee Aiyegbusi, et al.
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