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Healthcare Policy = Politiques De Sante
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May 4, 2010
Sorry, You Can't Have That Information: Data Holder Confusion Regarding Privacy Requirements for Personal Health Information and the Potential Chilling Effect on Health Research
Daryl Pullman, Sharon K Buehler, Larry Felt, et al.
Public Health Genomics
|
September 9, 2021
Psychological Distress and Quality of Life in Participants Undergoing Genetic Testing for Arrhythmogenic Right Ventricular Cardiomyopathy Caused by TMEM43 p.S358L: Is It Time to Offer Population-Based Genetic Screening?
Cassidy Brothers, Holly Etchegary, Fiona Curtis, et al.
Personalized Medicine
|
May 16, 2018
Benefits and burdens of newborn screening: public understanding and decision-making
Stuart G Nicholls, Brenda J Wilson, Holly Etchegary, et al.
Research Involvement and Engagement
|
October 25, 2017
Giving voice to older adults living with frailty and their family caregivers: engagement of older adults living with frailty in research, health care decision making, and in health policy
Jayna Holroyd-Leduc, Joyce Resin, Lisa Ashley, et al.
European Journal of Human Genetics : EJHG
|
June 16, 2016
Consent for newborn screening: parents' and health-care professionals' experiences of consent in practice
Holly Etchegary, Stuart G Nicholls, Laure Tessier, et al.
Public Health Ethics
|
August 7, 2019
What is in a Name? Parent, Professional and Policy-Maker Conceptions of Consent-Related Language in the Context of Newborn Screening
Stuart G Nicholls, Holly Etchegary, Laure Tessier, et al.
Plos Biology
|
March 28, 2008
Research ethics recommendations for whole-genome research: consensus statement
Timothy Caulfield, Amy L McGuire, Mildred Cho, et al.
Journal of Obstetrics and Gynaecology Canada : JOGC = Journal D'Obstetrique Et Gynecologie Du Canada : JOGC
|
October 5, 2007
Stem cell research ethics: consensus statement on emerging issues
Timothy Caulfield, Ubaka Ogbogu, Erin Nelson, et al.
Plos Biology
|
November 14, 2013
Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate
Timothy Caulfield, Jim Evans, Amy McGuire, et al.
Journal of Law and the Biosciences
|
February 25, 2014
A review of the key issues associated with the commercialization of biobanks
Timothy Caulfield, Sarah Burningham, Yann Joly, et al.
Page
of 7
Search research articles
Search
Showing results (51-60 of 61) with videos related to
Sort By:
Page
of 7
Healthcare Policy = Politiques De Sante
|
May 4, 2010
Sorry, You Can't Have That Information: Data Holder Confusion Regarding Privacy Requirements for Personal Health Information and the Potential Chilling Effect on Health Research
Daryl Pullman, Sharon K Buehler, Larry Felt, et al.
Public Health Genomics
|
September 9, 2021
Psychological Distress and Quality of Life in Participants Undergoing Genetic Testing for Arrhythmogenic Right Ventricular Cardiomyopathy Caused by TMEM43 p.S358L: Is It Time to Offer Population-Based Genetic Screening?
Cassidy Brothers, Holly Etchegary, Fiona Curtis, et al.
Personalized Medicine
|
May 16, 2018
Benefits and burdens of newborn screening: public understanding and decision-making
Stuart G Nicholls, Brenda J Wilson, Holly Etchegary, et al.
Research Involvement and Engagement
|
October 25, 2017
Giving voice to older adults living with frailty and their family caregivers: engagement of older adults living with frailty in research, health care decision making, and in health policy
Jayna Holroyd-Leduc, Joyce Resin, Lisa Ashley, et al.
European Journal of Human Genetics : EJHG
|
June 16, 2016
Consent for newborn screening: parents' and health-care professionals' experiences of consent in practice
Holly Etchegary, Stuart G Nicholls, Laure Tessier, et al.
Public Health Ethics
|
August 7, 2019
What is in a Name? Parent, Professional and Policy-Maker Conceptions of Consent-Related Language in the Context of Newborn Screening
Stuart G Nicholls, Holly Etchegary, Laure Tessier, et al.
Plos Biology
|
March 28, 2008
Research ethics recommendations for whole-genome research: consensus statement
Timothy Caulfield, Amy L McGuire, Mildred Cho, et al.
Journal of Obstetrics and Gynaecology Canada : JOGC = Journal D'Obstetrique Et Gynecologie Du Canada : JOGC
|
October 5, 2007
Stem cell research ethics: consensus statement on emerging issues
Timothy Caulfield, Ubaka Ogbogu, Erin Nelson, et al.
Plos Biology
|
November 14, 2013
Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate
Timothy Caulfield, Jim Evans, Amy McGuire, et al.
Journal of Law and the Biosciences
|
February 25, 2014
A review of the key issues associated with the commercialization of biobanks
Timothy Caulfield, Sarah Burningham, Yann Joly, et al.
Page
of 7