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Deborah Mascalzoni

Showing results (11-20 of 71) with videos related to

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Frontiers in Medicine|August 1, 2024
Ethical framework for FACILITATE: a foundation for the return of clinical trial data to participantsCiara Staunton, Johanna M C Blom, Deborah Mascalzoni, et al.
European Journal of Human Genetics : EJHG|June 15, 2022
Ethical, legal and social/societal implications (ELSI) of recall-by-genotype (RbG) and genotype-driven-research (GDR) approaches: a scoping reviewKatharina Tschigg, Luca Consoli, Roberta Biasiotto, et al.
Advances in Experimental Medicine and Biology|December 8, 2017
The Role of Solidarity(-ies) in Rare Diseases ResearchDeborah Mascalzoni, Carlo Petrini, Domenica Taruscio, et al.
Journal of Community Genetics|July 9, 2021
Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participantsCiara Staunton, Maria Kösters, Peter P Pramstaller, et al.
BMC Medical Informatics and Decision Making|July 30, 2025
Exploring doctors' perspectives on precision medicine and AI in colorectal cancer: opportunities and challenges for the doctor-patient relationshipMirko Ancillotti, Åsa Grauman, Jorien Veldwijk, et al.
Hypertension (Dallas, Tex. : 1979)|February 18, 2016
Collaboration to Understand Complex Diseases: Preeclampsia and Adverse Pregnancy OutcomesJames M Roberts, Deborah Mascalzoni, Roberta B Ness, et al.
European Journal of Human Genetics : EJHG|February 15, 2024
Ethical and social reflections on the proposed European Health Data SpaceCiara Staunton, Mahsa Shabani, Deborah Mascalzoni, et al.
Medizinische Genetik : Mitteilungsblatt Des Berufsverbandes Medizinische Genetik E.V|June 5, 2024
Clinical relevance and translational impact of reduced penetrance in genetic movement disordersSebastian Heinzel, Deborah Mascalzoni, Tobias Bäumer, et al.
Frontiers in Psychiatry|January 30, 2023
Editorial: Digital biomarkers in testing the safety and efficacy of new drugs in mental health: A collaborative effort of patients, clinicians, researchers, and regulatorsJohanna Maria Catharina Blom, Cristina Benatti, Deborah Mascalzoni, et al.
European Journal of Human Genetics : EJHG|April 7, 2016
'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics researchPauline McCormack, Anna Kole, Sabina Gainotti, et al.
Pageof 8

Showing results (11-20 of 71) with videos related to

Sort By:
Pageof 8
Frontiers in Medicine|August 1, 2024
Ethical framework for FACILITATE: a foundation for the return of clinical trial data to participantsCiara Staunton, Johanna M C Blom, Deborah Mascalzoni, et al.
European Journal of Human Genetics : EJHG|June 15, 2022
Ethical, legal and social/societal implications (ELSI) of recall-by-genotype (RbG) and genotype-driven-research (GDR) approaches: a scoping reviewKatharina Tschigg, Luca Consoli, Roberta Biasiotto, et al.
Advances in Experimental Medicine and Biology|December 8, 2017
The Role of Solidarity(-ies) in Rare Diseases ResearchDeborah Mascalzoni, Carlo Petrini, Domenica Taruscio, et al.
Journal of Community Genetics|July 9, 2021
Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participantsCiara Staunton, Maria Kösters, Peter P Pramstaller, et al.
BMC Medical Informatics and Decision Making|July 30, 2025
Exploring doctors' perspectives on precision medicine and AI in colorectal cancer: opportunities and challenges for the doctor-patient relationshipMirko Ancillotti, Åsa Grauman, Jorien Veldwijk, et al.
Hypertension (Dallas, Tex. : 1979)|February 18, 2016
Collaboration to Understand Complex Diseases: Preeclampsia and Adverse Pregnancy OutcomesJames M Roberts, Deborah Mascalzoni, Roberta B Ness, et al.
European Journal of Human Genetics : EJHG|February 15, 2024
Ethical and social reflections on the proposed European Health Data SpaceCiara Staunton, Mahsa Shabani, Deborah Mascalzoni, et al.
Medizinische Genetik : Mitteilungsblatt Des Berufsverbandes Medizinische Genetik E.V|June 5, 2024
Clinical relevance and translational impact of reduced penetrance in genetic movement disordersSebastian Heinzel, Deborah Mascalzoni, Tobias Bäumer, et al.
Frontiers in Psychiatry|January 30, 2023
Editorial: Digital biomarkers in testing the safety and efficacy of new drugs in mental health: A collaborative effort of patients, clinicians, researchers, and regulatorsJohanna Maria Catharina Blom, Cristina Benatti, Deborah Mascalzoni, et al.
European Journal of Human Genetics : EJHG|April 7, 2016
'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics researchPauline McCormack, Anna Kole, Sabina Gainotti, et al.
Pageof 8