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Haemophilia : the Official Journal of the World Federation of Hemophilia|January 26, 2026
Key Findings From the World Federation of Haemophilia National Member Organization Survey on Women and Girls With Bleeding DisordersDonna Coffin, Yannick Collé, Roshni Kulkarni, et al.Gene Therapy|March 14, 2026
Building a gene editing lexicon: a model for rare and inherited disordersLeonard A Valentino, Cedric Hermans, Donna Coffin, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|March 24, 2020
Towards a global multidisciplinary consensus framework on haemophilia gene therapy: Report of the 2nd World Federation of Haemophilia Gene Therapy Round TableGlenn F Pierce, K John Pasi, Donna Coffin, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|March 9, 2026
Haemophilia Care in India: A Multicentre Cross-Sectional Analysis From the World Bleeding Disorders Registry Benchmarking Across Global Gross National Income StrataNita Radhakrishnan, M Joseph John, Emily Ayoub, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|February 28, 2026
Implementing Shared Decision-Making in Haemophilia Care: Best Practice Recommendations From a Western European Multi-Stakeholder Delphi ProcessDonna Coffin, Robert Klamroth, Miguel Crato, et al.Journal of Thrombosis and Haemostasis : JTH|January 19, 2021
Core data set on safety, efficacy, and durability of hemophilia gene therapy for a global registry: Communication from the SSC of the ISTHBarbara Konkle, Glen Pierce, Donna Coffin, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|September 6, 2024
Development of the coreHEM mental health patient-reported outcome measure - A novel mental health outlook measure for people with haemophiliaElizabeth Clearfield, Hsing-Yuan Chang, Ellen M Janssen, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|June 5, 2020
The World Federation of Hemophilia Annual Global Survey 1999-2018Jeffrey S Stonebraker, Paula H B Bolton-Maggs, Mark Brooker, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|May 22, 2023
Von Willebrand Disease: Gaining a global perspectiveJamie M O'Sullivan, Ellia Tootoonchian, Baiba Ziemele, et al.Research and Practice in Thrombosis and Haemostasis|May 24, 2021
Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes setErna C van Balen, Brian O'Mahony, Marjon H Cnossen, et al.Pageof 2