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The Lancet. Oncology|December 3, 2014
Everolimus for subependymal giant cell astrocytoma in patients with tuberous sclerosis complex: 2-year open-label extension of the randomised EXIST-1 studyDavid Neal Franz, Elena Belousova, Steven Sparagana, et al.
Journal of Crohn'S & Colitis|December 22, 2010
IBD patients need in health quality of care ECCO consensusMargarita Elkjaer, Gabrielle Moser, Walter Reinisch, et al.
Lancet (London, England)|January 15, 2013
Everolimus for angiomyolipoma associated with tuberous sclerosis complex or sporadic lymphangioleiomyomatosis (EXIST-2): a multicentre, randomised, double-blind, placebo-controlled trialJohn J Bissler, J Christopher Kingswood, Elżbieta Radzikowska, et al.
Lancet (London, England)|November 20, 2012
Efficacy and safety of everolimus for subependymal giant cell astrocytomas associated with tuberous sclerosis complex (EXIST-1): a multicentre, randomised, placebo-controlled phase 3 trialDavid Neal Franz, Elena Belousova, Steven Sparagana, et al.
Journal of Crohn'S & Colitis|June 21, 2011
Construction and validation of a web-based epidemiological database for inflammatory bowel diseases in Europe An EpiCom studyJohan Burisch, Silvija Cukovic-Cavka, Ioannis Kaimakliotis, et al.
Orphanet Journal of Rare Diseases|November 27, 2014
TOSCA - first international registry to address knowledge gaps in the natural history and management of tuberous sclerosis complexJohn C Kingswood, Paolo Bruzzi, Paolo Curatolo, et al.
Orphanet Journal of Rare Diseases|July 7, 2021
Rare manifestations and malignancies in tuberous sclerosis complex: findings from the TuberOus SClerosis registry to increAse disease awareness (TOSCA)Matthias Sauter, Elena Belousova, Mirjana P Benedik, et al.
Frontiers in Neurology|September 27, 2021
Historical Patterns of Diagnosis, Treatments, and Outcome of Epilepsy Associated With Tuberous Sclerosis Complex: Results From TOSCA RegistryRima Nabbout, Elena Belousova, Mirjana P Benedik, et al.
Frontiers in Neurology|October 12, 2020
Renal Manifestations of Tuberous Sclerosis Complex: Key Findings From the Final Analysis of the TOSCA Study Focussing Mainly on Renal AngiomyolipomasJ Chris Kingswood, Elena Belousova, Mirjana P Benedik, et al.
Frontiers in Neurology|December 5, 2019
The TOSCA Registry for Tuberous Sclerosis-Lessons Learnt for Future Registry Development in Rare and Complex DiseasesRuben Marques, Elena Belousova, Mirjana P Benedik, et al.
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