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Biopreservation and Biobanking|May 22, 2014
Landscape analysis of registries and biobanks: a tool for disease advocacy organizations to enhance translational research systemsElizabeth J Horn, Jim F Bialick, Sharon F Terry
Personalized Medicine|May 23, 2018
Genetic Alliance Registry and BioBank: a novel disease advocacy-driven research solutionSharon F Terry, Elizabeth J Horn, Joan Scott, et al.
Biopreservation and Biobanking|April 9, 2016
Realizing Our Potential in Biobanking: Disease Advocacy Organizations Enliven Translational ResearchKelly A Edwards, Sharon F Terry, Dana Gold, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics|January 21, 2012
How disease advocacy organizations participate in clinical research: a survey of genetic organizationsDavid C Landy, Margaret A Brinich, Mary Ellen Colten, et al.
Personalized Medicine|May 24, 2018
What do leaders of disease-specific advocacy organizations know about pharmacogenomics and biomarkers, anyway?Sharon F Terry
Frontiers in Genetics|June 14, 2013
Disease advocacy organizations catalyze translational researchSharon F Terry
FEBS Letters|November 19, 2020
The Human Face of ABCC6Sharon F Terry
The CRISPR Journal|May 21, 2025
Editing the Future: A Call for Justice, Humility, and CommunionSharon F Terry
Science Translational Medicine|January 6, 2017
The study is open: Participants are now recruiting investigatorsSharon F Terry
Science Translational Medicine|February 11, 2011
Power to the people: participant ownership of clinical trial dataSharon F Terry, Patrick F Terry
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