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Ethnicity & Health|July 30, 2011
Familial influences on antenatal and newborn haemoglobinopathy screeningFiona Ulph, Tim Cullinan, Nadeem Qureshi, et al.
European Journal of Human Genetics : EJHG|June 19, 2024
Views of children and young adults about Whole Genome Sequencing in newborn screening: a qualitative studyMolly Parfett, Faye Johnson, Rebecca Bennett, et al.
Journal of Genetic Counseling|July 11, 2014
Disparities in current and future childhood and newborn carrier identificationMelissa Noke, Alison Wearden, Sarah Peters, et al.
European Journal of Human Genetics : EJHG|June 10, 2010
A qualitative study exploring genetic counsellors' experiences of counselling childrenFiona Ulph, James Leong, Cris Glazebrook, et al.
BMC Health Services Research|December 15, 2007
Imparting carrier status results detected by universal newborn screening for sickle cell and cystic fibrosis in England: a qualitative study of current practice and policy challengesHilda Parker, Nadeem Qureshi, Fiona Ulph, et al.
European Journal of Human Genetics : EJHG|May 28, 2015
A qualitative study to explore how professionals in the United Kingdom make decisions to test children for a sickle cell carrier statusMelissa Noke, Sarah Peters, Alison Wearden, et al.
Journal of Genetic Counseling|December 6, 2013
Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: qualitative study of parents' intentions, views and support needsFiona Ulph, Tim Cullinan, Nadeem Qureshi, et al.
European Journal of Human Genetics : EJHG|July 10, 2014
Parents' responses to receiving sickle cell or cystic fibrosis carrier results for their child following newborn screeningFiona Ulph, Tim Cullinan, Nadeem Qureshi, et al.
Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research|April 15, 2017
Eliciting Preferences for Information Provision in Newborn Bloodspot Screening ProgramsStuart J Wright, Fiona Ulph, Nimarta Dharni, et al.
European Journal of Human Genetics : EJHG|March 8, 2022
Receiving results of uncertain clinical relevance from population genetic screening: systematic review & meta-synthesis of qualitative researchFaye Johnson, Fiona Ulph, Rhona MacLeod, et al.
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