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Children (Basel, Switzerland)|March 28, 2024
Acute and Persistent Postoperative Functional Decline in Children with Severe Neurological Impairment: A Qualitative, Exploratory StudyLiisa Holsti, Sarah England, Mackenzie Gibson, et al.
Research in Developmental Disabilities|October 21, 2017
Charting the territory: Describing the functional abilities of children with progressive neurological conditionsSandy K Tatla, Liisa Holsti, Gail Stephanie Andrews, et al.
Archives of Disease in Childhood|May 17, 2014
Charting the territory: symptoms and functional assessment in children with progressive, non-curable conditionsRose Steele, Harold Siden, Susan Cadell, et al.
Journal of Developmental and Behavioral Pediatrics : JDBP|April 19, 2023
Family Perspectives on In-Home Multimodal Longitudinal Data Collection for Children Who Function Across the Developmental SpectrumKatelynn E Boerner, Leora Pearl-Dowler, Liisa Holsti, et al.
Journal of Pain Research|August 24, 2017
Pain reporting and analgesia management in 270 children with a progressive neurologic, metabolic or chromosomally based condition with impairment of the central nervous system: cross-sectional, baseline results from an observational, longitudinal studyStefan J Friedrichsdorf, Andrea C Postier, Gail S Andrews, et al.
Child: Care, Health and Development|August 17, 2021
Medicinal cannabis in children and adolescents with autism spectrum disorder: A scoping reviewSarah Fletcher, Colleen Pawliuk, Angie Ip, et al.
The American Journal of Orthopsychiatry|May 16, 2014
Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation modelSusan Cadell, David Hemsworth, Trudy Smit Quosai, et al.
BMC Pediatrics|September 22, 2010
Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territoryHarold Siden, Rose Steele, Rollin Brant, et al.
Journal of Developmental and Behavioral Pediatrics : JDBP|October 24, 2024
The Living Lab at Home: Feasibility and Acceptability of Multimodal In-Home Data Collection Among Youth Across the Developmental SpectrumKatelynn E Boerner, Veronica Dudarev, Leora Pearl-Dowler, et al.
Developmental Medicine and Child Neurology|March 15, 2019
A novel classification system for research reporting in rare and progressive genetic conditionsClara D M van Karnebeek, Daniël Beumer, Colleen Pawliuk, et al.
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