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Patient Preference and Adherence|December 19, 2022
Development and Validation of the Patient/Caregiver Reported Hydroxyurea Evaluation of Adherence for Life (HEAL) ScaleIsaac A Janson, Ellen M Bloom, Kisha C Hampton, et al.Haemophilia : the Official Journal of the World Federation of Hemophilia|March 30, 2019
Population-based surveillance of haemophilia and patient outcomes in Indiana using multiple data sourcesAmanda I Okolo, John Michael Soucie, Scott D Grosse, et al.Pediatric Blood & Cancer|January 6, 2021
Hematopoietic stem cell transplant referral patterns for children with sickle cell disease vary among pediatric hematologist/oncologists' practice focus: A Sickle Cell Transplant Advocacy and Research Alliance (STAR) studyEmily Riehm Meier, Allistair A Abraham, Alex Ngwube, et al.Haematologica|February 1, 2020
An international registry of patients with plasminogen deficiency (HISTORY)Amy D Shapiro, Marzia Menegatti, Roberta Palla, et al.MMWR. Morbidity and Mortality Weekly Report|March 28, 2024
Birth Prevalence of Sickle Cell Disease and County-Level Social Vulnerability - Sickle Cell Data Collection Program, 11 States, 2016-2020Mariam Kayle, Audrey L Blewer, Wei Pan, et al.Pageof 2