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Journal of Patient-Reported Outcomes|November 20, 2021
Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigationCarolyn E Schwartz, Roland B Stark, Ivana F Audhya, et al.Health and Quality of Life Outcomes|June 11, 2022
Factors associated with the health-related quality of life among people with Duchenne muscular dystrophy: a study using the Health Utilities Index (HUI)Shelagh M Szabo, Ivana F Audhya, Basia Rogula, et al.Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation|December 8, 2019
Characterizing health state utilities associated with Duchenne muscular dystrophy: a systematic reviewShelagh M Szabo, Ivana F Audhya, Daniel C Malone, et al.Journal of Patient-Reported Outcomes|March 10, 2022
Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort studyCarolyn E Schwartz, Roland B Stark, Katrina Borowiec, et al.Advances in Therapy|December 30, 2025
The Balancing Act of Paid Work and Caregiving in Duchenne Muscular Dystrophy (DMD): Results from a Cross-sectional SurveyJessica S Dunne, Shelagh M Szabo, Katherine L Gooch, et al.Journal of Medical Economics|June 17, 2022
QALYs and ambulatory status: societal preferences for healthcare decision makingLorna L Freath, Alistair S Curry, David M W Cork, et al.Orphanet Journal of Rare Diseases|November 23, 2021
Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banksCarolyn E Schwartz, Roland B Stark, David Cella, et al.Journal of Neuromuscular Diseases|May 9, 2022
Progression to Loss of Ambulation Among Patients with Autosomal Recessive Limb-girdle Muscular Dystrophy: A Systematic ReviewIvana F Audhya, Antoinette Cheung, Shelagh M Szabo, et al.Journal of Patient-Reported Outcomes|January 24, 2022
Societal perspectives on disease and treatment attributes characterizing rare diseases: a qualitative study from the United StatesShelagh M Szabo, Ivana F Audhya, David Feeny, et al.Journal of Clinical Neuromuscular Disease|November 14, 2023
Patterns of Clinical Progression Among Patients With Autosomal Recessive Limb-Girdle Muscular Dystrophy: A Systematic ReviewAntoinette Cheung, Ivana F Audhya, Shelagh M Szabo, et al.Pageof 2