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Orphanet Journal of Rare Diseases|July 9, 2020
Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registryJeffrey A Glassberg, Elizabeth A Linton, Katrina Burson, et al.Plos One|October 29, 2021
Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation ConsortiumRita V Masese, Dominique Bulgin, Mitchell R Knisely, et al.Pediatric Blood & Cancer|May 6, 2025
User Perceptions of a Multilevel mHealth Intervention to Boost Adherence to Hydroxyurea in Sickle Cell DiseaseChristina M Abrams, Natalia Davila, Sherif M Badawy, et al.International Journal of Gynaecology and Obstetrics: the Official Organ of the International Federation of Gynaecology and Obstetrics|October 25, 2024
Patient-reported pregnancy loss and maternal complications: Insights from the sickle cell disease implementation consortiumJoacy G Mathias, Rita V Masese, Allison A King, et al.BMC Health Services Research|November 12, 2023
"The project did not come to us with a solution": Perspectives of research teams on implementing a study about electronic health record-embedded individualized pain plans for emergency department treatment of vaso-occlusive episodes in adults with sickle cell diseaseAna A Baumann, Jane S Hankins, Lewis L Hsu, et al.Blood Advances|September 22, 2023
A multilevel mHealth intervention boosts adherence to hydroxyurea in individuals with sickle cell diseaseJane S Hankins, Donald Brambilla, Michael B Potter, et al.Annals of the American Thoracic Society|August 31, 2019
Identifying Clinical and Research Priorities in Sickle Cell Lung Disease. An Official American Thoracic Society Workshop ReportA Parker Ruhl, S Christy Sadreameli, Julian L Allen, et al.Pageof 2