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Studies in Health Technology and Informatics|September 3, 2025
Concept for a Framework for Integrating Registry and Routine Healthcare Data in GermanyJessica Vasseur, Dennis Kadioglu, Holger Storf
Studies in Health Technology and Informatics|September 3, 2025
Open Source Registry System for Rare Diseases (OSSE): Development and Usability Evaluation of an Initial Audit Trail PrototypeTim Vincent Knecht, Jens Göbel, Axel Zieschank, et al.
Orphanet Journal of Rare Diseases|September 14, 2022
Identifying project topics and requirements in a citizen science project in rare diseases: a participative studyMichaela Neff, Holger Storf, Jessica Vasseur, et al.
BMC Medical Informatics and Decision Making|September 17, 2020
Interviews with experts in rare diseases for the development of clinical decision support system software - a qualitative studyJannik Schaaf, Hans-Ulrich Prokosch, Martin Boeker, et al.
Studies in Health Technology and Informatics|May 27, 2021
A Medical Report Feature for OSSE Rare Disease RegistriesKatja Schueler, Axel Zieschank, Jens Göbel, et al.
Studies in Health Technology and Informatics|May 20, 2022
Development of an Interactive Dashboard for OSSE Rare Disease RegistriesJessica Vasseur, Axel Zieschank, Jens Göbel, et al.
International Journal of Medical Informatics|October 16, 2024
Development and expert inspections of the user interface for a primary care decision support systemMichaela Christina Neff, Dania Schütze, Svea Holtz, et al.
Frontiers in Medicine|November 5, 2025
<i>Enterococcus faecium</i> DNA in acute decompensated cirrhosis: a key player in inflammation and kidney dysfunctionOlaf Tyc, Nico Kraus, Toska Wiedemann, et al.
Clinical Research in Cardiology : Official Journal of the German Cardiac Society|May 15, 2024
From rare events to systematic data collection: the RESCUED registry for sudden cardiac death in the young in GermanyRenaldas Barkauskas, Tina Jenewein, Stefanie Scheiper-Welling, et al.
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