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Assay and Drug Development Technologies
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August 23, 2014
Interview with Jill Jarecki, PhD
Jill Jarecki, Vicki Glaser
Neurology and Therapy
|
October 19, 2023
Evaluating Perceived Fatigue within an Adult Spinal Muscular Atrophy Population
Lisa Belter, Ilse Peterson, Jill Jarecki
Orphanet Journal of Rare Diseases
|
August 26, 2020
Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update Survey
Lisa Belter, Rosángel Cruz, Jill Jarecki
Plos One
|
November 8, 2022
Knowledge of genetic test results among caregivers and individuals with spinal muscular atrophy
Lisa Belter, Allison Mazzella, Shannon O'Brien, et al.
Orphanet Journal of Rare Diseases
|
February 23, 2021
"I have SMA, SMA doesn't have me": a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMA
Allison Mazzella, Mary Curry, Lisa Belter, et al.
Clinical Therapeutics
|
May 7, 2019
Evaluating Benefit-risk Decision-making in Spinal Muscular Atrophy: A First-ever Study to Assess Risk Tolerance in the SMA Patient Community
Rosángel Cruz, Lisa Belter, Mike Wasnock, et al.
Orphanet Journal of Rare Diseases
|
May 24, 2020
The SMA Clinical Trial Readiness Program: creation and evaluation of a program to enhance SMA trial readiness in the United States
Ilse Peterson, Rosángel Cruz, Fatou Sarr, et al.
Telemedicine Journal and E-Health : the Official Journal of the American Telemedicine Association
|
August 11, 2023
Telemedicine Use, Comfort, and Perceived Effectiveness in the Spinal Muscular Atrophy Community
Ilse S Peterson, Lisa T Belter, Mary A Curry, et al.
Journal of Market Access & Health Policy
|
November 23, 2020
Economic burden of spinal muscular atrophy: an analysis of claims data
Lisa Belter, Rosángel Cruz, Sierra Kulas, et al.
BMC Pediatrics
|
May 18, 2021
Awareness screening and referral patterns among pediatricians in the United States related to early clinical features of spinal muscular atrophy (SMA)
Mary Curry, Rosángel Cruz, Lisa Belter, et al.
Page
of 4
Search research articles
Search
Showing results (1-10 of 35) with videos related to
Sort By:
Page
of 4
Assay and Drug Development Technologies
|
August 23, 2014
Interview with Jill Jarecki, PhD
Jill Jarecki, Vicki Glaser
Neurology and Therapy
|
October 19, 2023
Evaluating Perceived Fatigue within an Adult Spinal Muscular Atrophy Population
Lisa Belter, Ilse Peterson, Jill Jarecki
Orphanet Journal of Rare Diseases
|
August 26, 2020
Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update Survey
Lisa Belter, Rosángel Cruz, Jill Jarecki
Plos One
|
November 8, 2022
Knowledge of genetic test results among caregivers and individuals with spinal muscular atrophy
Lisa Belter, Allison Mazzella, Shannon O'Brien, et al.
Orphanet Journal of Rare Diseases
|
February 23, 2021
"I have SMA, SMA doesn't have me": a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMA
Allison Mazzella, Mary Curry, Lisa Belter, et al.
Clinical Therapeutics
|
May 7, 2019
Evaluating Benefit-risk Decision-making in Spinal Muscular Atrophy: A First-ever Study to Assess Risk Tolerance in the SMA Patient Community
Rosángel Cruz, Lisa Belter, Mike Wasnock, et al.
Orphanet Journal of Rare Diseases
|
May 24, 2020
The SMA Clinical Trial Readiness Program: creation and evaluation of a program to enhance SMA trial readiness in the United States
Ilse Peterson, Rosángel Cruz, Fatou Sarr, et al.
Telemedicine Journal and E-Health : the Official Journal of the American Telemedicine Association
|
August 11, 2023
Telemedicine Use, Comfort, and Perceived Effectiveness in the Spinal Muscular Atrophy Community
Ilse S Peterson, Lisa T Belter, Mary A Curry, et al.
Journal of Market Access & Health Policy
|
November 23, 2020
Economic burden of spinal muscular atrophy: an analysis of claims data
Lisa Belter, Rosángel Cruz, Sierra Kulas, et al.
BMC Pediatrics
|
May 18, 2021
Awareness screening and referral patterns among pediatricians in the United States related to early clinical features of spinal muscular atrophy (SMA)
Mary Curry, Rosángel Cruz, Lisa Belter, et al.
Page
of 4