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Jill Jarecki

Showing results (11-20 of 35) with videos related to

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BMC Neurology|April 6, 2017
A qualitative study of perceptions of meaningful change in spinal muscular atrophySarah McGraw, Ying Qian, Jeff Henne, et al.
BMC Neurology|October 27, 2015
Understanding the experiences and needs of individuals with Spinal Muscular Atrophy and their parents: a qualitative studyYing Qian, Sarah McGraw, Jeff Henne, et al.
Neurology and Therapy|March 2, 2024
Assessment of Barriers to Referral and Appointment Wait Times for the Evaluation of Spinal Muscular Atrophy (SMA): Findings from a Web-Based Physician SurveyMary A Curry, Rosángel E Cruz, Lisa T Belter, et al.
Neurology and Therapy|June 22, 2023
Effects of the COVID-19 Pandemic on SMA Screening and Care: Physician and Community InsightsMary Curry, Ilse Peterson, Lisa Belter, et al.
Muscle & Nerve|May 26, 2022
Assessing perspectives of disease burden and clinically meaningful changes using the Spinal Muscular Atrophy Health Index in adolescents and young adultsAllison Mazzella, Rosángel Cruz, Lisa Belter, et al.
Physical Therapy|July 29, 2022
Clinical and Research Readiness for Spinal Muscular Atrophy: The Time Is Now for Knowledge TranslationKristin J Krosschell, Sally Dunaway Young, Ilse Peterson, et al.
Journal of Genetic Counseling|December 21, 2017
An Evidence-Based, Community-Engaged Approach to Develop an Interactive Deliberation Tool for Pediatric Neuromuscular TrialsRebecca R Moultrie, Megan A Lewis, Ryan S Paquin, et al.
Journal of Neuromuscular Diseases|March 20, 2025
Patient-reported assessment of bulbar function in spinal muscular atrophy (SMA): Validation of a self-report scaleMaureen A Lefton-Greif, Lisa Belter, Jill Jarecki, et al.
Neurology and Therapy|May 31, 2022
The Cure SMA Clinical Trial Experience Survey: A Study of Trial Participant Perspectives on Clinical Trial Management and Patient-Centric Management PracticesIlse S Peterson, Allison J Mazzella, Lisa T Belter, et al.
Human Molecular Genetics|June 10, 2005
Diverse small-molecule modulators of SMN expression found by high-throughput compound screening: early leads towards a therapeutic for spinal muscular atrophyJill Jarecki, Xiaocun Chen, Alexandra Bernardino, et al.
Pageof 4

Showing results (11-20 of 35) with videos related to

Sort By:
Pageof 4
BMC Neurology|April 6, 2017
A qualitative study of perceptions of meaningful change in spinal muscular atrophySarah McGraw, Ying Qian, Jeff Henne, et al.
BMC Neurology|October 27, 2015
Understanding the experiences and needs of individuals with Spinal Muscular Atrophy and their parents: a qualitative studyYing Qian, Sarah McGraw, Jeff Henne, et al.
Neurology and Therapy|March 2, 2024
Assessment of Barriers to Referral and Appointment Wait Times for the Evaluation of Spinal Muscular Atrophy (SMA): Findings from a Web-Based Physician SurveyMary A Curry, Rosángel E Cruz, Lisa T Belter, et al.
Neurology and Therapy|June 22, 2023
Effects of the COVID-19 Pandemic on SMA Screening and Care: Physician and Community InsightsMary Curry, Ilse Peterson, Lisa Belter, et al.
Muscle & Nerve|May 26, 2022
Assessing perspectives of disease burden and clinically meaningful changes using the Spinal Muscular Atrophy Health Index in adolescents and young adultsAllison Mazzella, Rosángel Cruz, Lisa Belter, et al.
Physical Therapy|July 29, 2022
Clinical and Research Readiness for Spinal Muscular Atrophy: The Time Is Now for Knowledge TranslationKristin J Krosschell, Sally Dunaway Young, Ilse Peterson, et al.
Journal of Genetic Counseling|December 21, 2017
An Evidence-Based, Community-Engaged Approach to Develop an Interactive Deliberation Tool for Pediatric Neuromuscular TrialsRebecca R Moultrie, Megan A Lewis, Ryan S Paquin, et al.
Journal of Neuromuscular Diseases|March 20, 2025
Patient-reported assessment of bulbar function in spinal muscular atrophy (SMA): Validation of a self-report scaleMaureen A Lefton-Greif, Lisa Belter, Jill Jarecki, et al.
Neurology and Therapy|May 31, 2022
The Cure SMA Clinical Trial Experience Survey: A Study of Trial Participant Perspectives on Clinical Trial Management and Patient-Centric Management PracticesIlse S Peterson, Allison J Mazzella, Lisa T Belter, et al.
Human Molecular Genetics|June 10, 2005
Diverse small-molecule modulators of SMN expression found by high-throughput compound screening: early leads towards a therapeutic for spinal muscular atrophyJill Jarecki, Xiaocun Chen, Alexandra Bernardino, et al.
Pageof 4