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Health Expectations : an International Journal of Public Participation in Health Care and Health Policy|May 5, 2020
Utilizing patient advocates in Parkinson's disease: A proposed framework for patient engagement and the modern metrics that can determine its successMegan Feeney, Christiana Evers, Danielle Agpalo, et al.Therapeutic Innovation & Regulatory Science|September 24, 2023
Patient Engagement and Patient Experience Data in Regulatory Review and Health Technology Assessment: A Global Landscape ReviewNeil Bertelsen, Lode Dewulf, Silvia Ferrè, et al.Research Involvement and Engagement|October 25, 2023
The value of co-creating a clinical outcome assessment strategy for clinical trial research: process and lessons learntThomas Morel, Karlin Schroeder, Sophie Cleanthous, et al.Therapeutic Innovation & Regulatory Science|July 19, 2022
Building from Patient Experiences to Deliver Patient-Focused Healthcare Systems in Collaboration with Patients: A Call to ActionKarlin Schroeder, Neil Bertelsen, Jessica Scott, et al.Journal of Parkinson'S Disease|March 15, 2024
Perspectives of People At-Risk on Parkinson's Prevention ResearchJessi L Keavney, Soania Mathur, Karlin Schroeder, et al.Progress in Community Health Partnerships : Research, Education, and Action|July 28, 2025
Lessons Learned from a Parkinson's Research Patient Advisory Board Model with Academic CentersMegan Dini, Karlin Schroeder, Jori E Fleisher, et al.Neurology and Therapy|July 1, 2022
Patient Experience in Early-Stage Parkinson's Disease: Using a Mixed Methods Analysis to Identify Which Concepts Are Cardinal for Clinical Trial Outcome AssessmentThomas Morel, Sophie Cleanthous, John Andrejack, et al.Journal of Patient-Reported Outcomes|April 20, 2023
Development and early qualitative evidence of two novel patient-reported outcome instruments to assess daily functioning in people with early-stage Parkinson'sThomas Morel, Sophie Cleanthous, John Andrejack, et al.Alzheimer Disease and Associated Disorders|November 8, 2022
Family Caregiver Comorbidities in Lewy Body Dementia Versus Alzheimer Disease and Associated DisordersJori E Fleisher, Anna Moshkovich, Melissa Levin, et al.Pageof 1