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American Journal of Human Genetics
|
April 6, 2019
The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results
Yvonne Bombard, Kyle B Brothers, Sara Fitzgerald-Butt, et al.
The Journal of Pediatrics
|
October 20, 2015
When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority
Kyle B Brothers, Ingrid A Holm, Janet E Childerhose, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
July 7, 2018
Developing a conceptual, reproducible, rubric-based approach to consent and result disclosure for genetic testing by clinicians with minimal genetics background
Kelly E Ormond, Miranda L G Hallquist, Adam H Buchanan, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
August 26, 2016
Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results
Kyle B Brothers, Kelly M East, Whitley V Kelley, et al.
American Journal of Human Genetics
|
September 2, 2022
Addressing underrepresentation in genomics research through community engagement
Amy A Lemke, Edward D Esplin, Aaron J Goldenberg, et al.
The Patient
|
October 18, 2021
Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development
Hadley Stevens Smith, Stephanie R Morain, Jill Oliver Robinson, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
January 23, 2025
Genomic sequencing in diverse and underserved pediatric populations: Parent perspectives on understanding, uncertainty, psychosocial impact, and personal utility of results
Barbara B Biesecker, Sara L Ackerman, Kyle B Brothers, et al.
Journal of the American Medical Informatics Association : JAMIA
|
December 28, 2018
Enrichment sampling for a multi-site patient survey using electronic health records and census data
Nathaniel D Mercaldo, Kyle B Brothers, David S Carrell, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
May 24, 2018
Genomic sequencing identifies secondary findings in a cohort of parent study participants
Michelle L Thompson, Candice R Finnila, Kevin M Bowling, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
February 25, 2012
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, et al.
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Search research articles
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Showing results (71-80 of 93) with videos related to
Sort By:
Page
of 10
American Journal of Human Genetics
|
April 6, 2019
The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results
Yvonne Bombard, Kyle B Brothers, Sara Fitzgerald-Butt, et al.
The Journal of Pediatrics
|
October 20, 2015
When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority
Kyle B Brothers, Ingrid A Holm, Janet E Childerhose, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
July 7, 2018
Developing a conceptual, reproducible, rubric-based approach to consent and result disclosure for genetic testing by clinicians with minimal genetics background
Kelly E Ormond, Miranda L G Hallquist, Adam H Buchanan, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
August 26, 2016
Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results
Kyle B Brothers, Kelly M East, Whitley V Kelley, et al.
American Journal of Human Genetics
|
September 2, 2022
Addressing underrepresentation in genomics research through community engagement
Amy A Lemke, Edward D Esplin, Aaron J Goldenberg, et al.
The Patient
|
October 18, 2021
Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development
Hadley Stevens Smith, Stephanie R Morain, Jill Oliver Robinson, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
January 23, 2025
Genomic sequencing in diverse and underserved pediatric populations: Parent perspectives on understanding, uncertainty, psychosocial impact, and personal utility of results
Barbara B Biesecker, Sara L Ackerman, Kyle B Brothers, et al.
Journal of the American Medical Informatics Association : JAMIA
|
December 28, 2018
Enrichment sampling for a multi-site patient survey using electronic health records and census data
Nathaniel D Mercaldo, Kyle B Brothers, David S Carrell, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
May 24, 2018
Genomic sequencing identifies secondary findings in a cohort of parent study participants
Michelle L Thompson, Candice R Finnila, Kevin M Bowling, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
February 25, 2012
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, et al.
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of 10