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Neurology and Therapy|October 19, 2023
Evaluating Perceived Fatigue within an Adult Spinal Muscular Atrophy PopulationLisa Belter, Ilse Peterson, Jill Jarecki
Orphanet Journal of Rare Diseases|August 26, 2020
Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update SurveyLisa Belter, Rosángel Cruz, Jill Jarecki
Plos One|November 8, 2022
Knowledge of genetic test results among caregivers and individuals with spinal muscular atrophyLisa Belter, Allison Mazzella, Shannon O'Brien, et al.
Orphanet Journal of Rare Diseases|February 23, 2021
"I have SMA, SMA doesn't have me": a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMAAllison Mazzella, Mary Curry, Lisa Belter, et al.
Clinical Therapeutics|May 7, 2019
Evaluating Benefit-risk Decision-making in Spinal Muscular Atrophy: A First-ever Study to Assess Risk Tolerance in the SMA Patient CommunityRosángel Cruz, Lisa Belter, Mike Wasnock, et al.
Neurology and Therapy|April 27, 2026
Impact of Early Intervention on Motor Milestone Achievement in Spinal Muscular Atrophy: Insights from Cure SMA Survey DataKendra A K Lawrence, Lisa Belter, Mary Curry, et al.
Journal of Market Access & Health Policy|November 23, 2020
Economic burden of spinal muscular atrophy: an analysis of claims dataLisa Belter, Rosángel Cruz, Sierra Kulas, et al.
BMC Pediatrics|May 18, 2021
Awareness screening and referral patterns among pediatricians in the United States related to early clinical features of spinal muscular atrophy (SMA)Mary Curry, Rosángel Cruz, Lisa Belter, et al.
Neurology and Therapy|June 22, 2023
Effects of the COVID-19 Pandemic on SMA Screening and Care: Physician and Community InsightsMary Curry, Ilse Peterson, Lisa Belter, et al.
Muscle & Nerve|May 26, 2022
Assessing perspectives of disease burden and clinically meaningful changes using the Spinal Muscular Atrophy Health Index in adolescents and young adultsAllison Mazzella, Rosángel Cruz, Lisa Belter, et al.
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