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Journal of Neuromuscular Diseases|March 20, 2025
Patient-reported assessment of bulbar function in spinal muscular atrophy (SMA): Validation of a self-report scaleMaureen A Lefton-Greif, Lisa Belter, Jill Jarecki, et al.Journal of Neuromuscular Diseases|November 11, 2019
Spinal Muscular Atrophy (SMA) Subtype Concordance in Siblings: Findings From the Cure SMA CohortCynthia C Jones, Suzanne F Cook, Jill Jarecki, et al.Prenatal Diagnosis|August 27, 2022
Investigating attitudes toward prenatal diagnosis and fetal therapy for spinal muscular atrophyMarisa E Schwab, Shirley Shao, Li Zhang, et al.Journal of Neuromuscular Diseases|April 5, 2018
An overview of the Cure SMA membership database: Highlights of key demographic and clinical characteristics of SMA membersLisa Belter, Suzanne F Cook, Thomas O Crawford, et al.Journal of Neuromuscular Diseases|September 24, 2023
A Mixed-method Approach to Develop an Ambulatory Module of the SMA Independence ScaleHannah Staunton, Sophie Cleanthous, Vanda Teodoro, et al.Cost Effectiveness and Resource Allocation : C/E|August 23, 2023
Assessing the impact of grief on quality of life, work productivity, and health outcomes for parents bereaved from SMA: A study protocolAbigail G Riley, Christina M Mulé, Debra Lerner, et al.Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research|September 12, 2025
Mental Health, Quality of Life, and Work Functioning of Parents of Children Who Have Died of Spinal Muscular AtrophyTara A Lavelle, Abigail Riley, Stacey Kowal, et al.Medical Care|August 15, 2014
Comparative effectiveness of patient-centered strategies to improve FDA medication guidesMichael S Wolf, Stacy C Bailey, Marina Serper, et al.Journal of Neuromuscular Diseases|October 26, 2020
The Cure SMA Membership Surveys: Highlights of Key Demographic and Clinical Characteristics of Individuals with Spinal Muscular AtrophyLisa Belter, Jill Jarecki, Sandra P Reyna, et al.Journal of Pain and Symptom Management|September 24, 2025
Bereavement Experiences Among Parents of Children With Spinal Muscular Atrophy Type 1Christina M Mulé, Abigail Riley, Debra Lerner, et al.Pageof 2